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In November, MDI, in collaboration with Duchenne families, launched a survey to capture the lived experience of families living with Duchenne muscular dystrophy to support the patient submission for the reimbursement of givinostat. We would like to say a heartfelt thank you to everyone who took the time to participate.

As the only fully accessible, self-catered apartment in Ireland, the MDI Home from Home apartment is an essential and invaluable resource for our members and members of the public with accessibility needs.

Care Alliance Ireland has published a new Position Paper making the case for exempting Carer's Allowance and Carer's Benefit from income tax in the Republic of Ireland. The paper was presented directly to An Tánaiste, Simon Harris, during a meeting at Government Buildings yesterday.

Action Duchenne will host a special online event, Women's Health: Genetics and Decisions, on Monday 9th March 2026 from 6–7pm, marking International Women's Day 2026 with a spotlight on the often-overlooked needs of Duchenne carriers.

Siel Bleu currently provide our one-to-one physical training and nutrition programmes, along with our online group exercise classes. These pool sessions are a great addition to the Siel Bleu offering for MDI, expanding opportunities for accessible, water-based exercise in a supportive setting.

The coaching programme offers structured conversations that help you surface deeper insights from your head, heart, and gut, define what matters, and move with intention. It’s a space to “use the difficulty”—turning friction, uncertainty, or feeling stuck into learning and forward motion.

With just one match day left the AIPF Premier League has come down to the last day with not two but three teams in serious contention to take the trophy home. A convincing 3-1 win for Heroes Cork in their latest round of matches against longtime rivals Midlands United put them into pole position with a slight lead over Midlands and reigning champions Belfast Trailblazers leading into the final round of fixtures on March 7th.

The Board determine the annual membership fee and notify members of same and date of payment each year. The Board have agreed an annual membership fee of €15 for all member categories and the closing date for ‘full’ membership entitlements for the current year as 31 March 2026. Annual membership runs from January to December.

Many individuals living with neuromuscular conditions in Ireland are not aware that support is available to them and diagnosis can sometimes be delayed.

This project forms part of a wider research study examining the social and economic impacts of living with a rare disease on families of children with rare diseases across Ireland and Northern Ireland. The research is being conducted as part of a PhD project by researchers at University College Dublin.

We can hardly believe it, but 2026 marks Year 3 of MDI’s Barretstown Camp! Following the amazing success of the past two years, we are thrilled to be returning for another weekend full of fun, connection, and unforgettable memories.

The Minister for Social Protection, Dara Calleary, has launched a public consultation on the introduction of a new permanent Annual Cost of Disability Support Payment.

We are marching because thousands of people with disabilities are currently up to €1,400 worse off following Budget 2026. People deserve more than being forced to choose between heating their homes and eating a meal.Please mark your calendars and bring your banners. We need disabled people, families, allies and anyone interested in equality to make our voices heard.

MDI are delighted to share that our national awareness and fundraising campaign is back this week, raising awareness and funds to provide essentials supports and services for our members. All donors will be given Chez Emily praline chocolates .

Willing Able Mentoring (WAM) is a work placement programme which aims to promote access to the labour market for graduates with disabilities and build the capacity of employers to integrate disability into the mainstream workplace. Through WAM, both the employer and graduate are supported to ensure practical work-oriented solutions with a focus on inclusive work practices. Since 2005, The WAM Programme has provided over 700 placements for graduates with disabilities.

These online sessions are designed to provide accessible, guided physical activity from home, with options for both seated and standing participation, depending on individual ability and energy levels.

We’re delighted to introduce two ways to support our members: the MDI Membership Card and the Alert Card. Both are designed to make it easier for you, or your your child, to access support and ensure important information is available when needed.

I have been staying at the MDI Home from Home apartment since 2015. I live Dublin and I’m from Enniskillen County Fermanagh. I was confined to bed for 12 years and a wheelchair user for a decade – MDI has been brilliant to be able to go somewhere that I know everything I need a there.

The Disability Federation of Ireland are working alongside European partners on the IN-HABIT project. DFI is a federation of member organisations working with people with disabilities to implement the UN CRPD and ensure their equal participation in society. MDI aswell as other charities that provide advice and support to people with disabilities are member organsation are a part of DFI. The goal of the IN-HABIT project is to foster inclusive housing solutions by strengthening the capacity of housing professionals, service providers, and local authorities to support people with disabilities. The target groups of this partnership are Housing professionals, Service providers for people with disabilities, Local authority professionals and People with disabilities & their circle of support members.

The launch at the National Sports Campus was attended by Minister for Sport Patrick O’Donovan and FAI CEO David Courell, underlining strong leadership support for disability inclusion in sport. Funded by the UEFA Children’s Foundation and Lord’s Taverners Ireland / RevUp, in partnership with the FAI