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I have been staying at the MDI Home from Home apartment since 2015. I live Dublin and I’m from Enniskillen County Fermanagh. I was confined to bed for 12 years and a wheelchair user for a decade – MDI has been brilliant to be able to go somewhere that I know everything I need a there.

The Disability Federation of Ireland are working alongside European partners on the IN-HABIT project. DFI is a federation of member organisations working with people with disabilities to implement the UN CRPD and ensure their equal participation in society. MDI aswell as other charities that provide advice and support to people with disabilities are member organsation are a part of DFI. The goal of the IN-HABIT project is to foster inclusive housing solutions by strengthening the capacity of housing professionals, service providers, and local authorities to support people with disabilities. The target groups of this partnership are Housing professionals, Service providers for people with disabilities, Local authority professionals and People with disabilities & their circle of support members.

The launch at the National Sports Campus was attended by Minister for Sport Patrick O’Donovan and FAI CEO David Courell, underlining strong leadership support for disability inclusion in sport. Funded by the UEFA Children’s Foundation and Lord’s Taverners Ireland / RevUp, in partnership with the FAI

This very special weekend offers families living with neuromuscular conditions the opportunity to come together in a safe, inclusive and supportive environment, with a programme of fun activities, shared experiences and much-needed time to connect.

Thank you so much to all who attended the 2025 National Connection Conference this year. We are so grateful we got to meet so many members, experts and supporters on the day. We are incredibly grateful to our sponsors, who make days like these possible: Biogen Roche Novartis

Planning to join us at our conference on 7 December? We want to ensure all our attendees have a smooth and accessible experience! Check out this helpful video on how to access the CHANGING PLACES TOILET at the Cusack Suite, Croke Park

Planning to join us at our conference on 7 December? We want to ensure all our attendees have a smooth and accessible experience! Check out this helpful video on how to access the car park and Cusack Suite, Croke Park:

Join us at Croke Park on Saturday, 7 December, for a fantastic day filled with connection, fun, and learning. Don’t miss this amazing opportunity for: Youth Programme – ages 8–17 and Children’s Programme – ages 5–7.

A review is under way to decide if Givinostat for Duchenne muscular dystrophy will be reimbursed in Ireland. Your experience of living with Duchenne can help inform this decision - share your story in the survey link.

Secure your spot now and be part of a powerful day of coming together as a community to share and learn together. Find out more about our exciting programmes and book your place

Be part an unforgettable experience as we come together as a community, fostering meaningful connections, sharing knowledge, and supporting one another. Our conference is a warm and inclusive space for adults and young people living with muscular dystrophy and related neuromuscular conditions, as well as their families, healthcare professionals, and other stakeholders. We look forward to warmly welcoming you and sharing an enriching experience together.

We are delighted to invite you to our FSHD community gathering on Saturday 11 October. Please note this event will now take place online only. It will be opportunity for people living with FSHD and their families to connect as a community and learn together. We have lined up an exciting programme of speakers and topics that we hope you will find informative and empowering.

As part of Muscular Dystrophy Awareness month, we wish to let you know that 23 September is OPMD Awareness Day, when the OPMD Community comes together to raise awareness of Oculopharyngeal Muscular Dystrophy and to celebrate all members of the OPMD community.

Myositis is an inflammatory autoimmune condition that can cause muscles to become weak and painful. Idiopathic inflammatory myopathies are an umbrella term for the different types of myositis. These autoimmune conditions mean the body attacks its own muscles, connective tissue, blood vessels, skin, lungs, and other organs. This often occurs together with other symptoms, such as muscle swelling, pain, fatigue, difficulty moving limbs or lifting arms, increased falls, trouble swallowing, and others.

Paddy Hickey called in to MDI today and the team were delighted to wave him off as he embarks on the third edition of Walk4Ollie on Monday and the road to €100,000 for the Ollie Hickey Fund! We will be following his progress all next week, so watch this space!