Help Shape Future Research: Join Our PPI Group
MDI has a small group of PPI contributors who participated in two research studies last year. We are keen to expand this group and particularly welcome parents and caregivers of people with a neuromuscular condition
Collaboration with Brona Mulligan – Exploring Health-Related Quality of Life of Adults living with Neuromuscular Conditions
MDI had the pleasure of collaborating with Brona Mulligan, who was completing her Master’s in Health Psychology at the University of Galway. A dedicated group of PPI contributors - individuals with lived experience of neuromuscular conditions - worked closely with Brona to help shape her research question and played an integral role throughout the research process.
Breaking Down Barriers: University of Galway and Chronic Pain Ireland Event on Sex and Gender in Chronic Pain
This hybrid event will explore the critical issue of sex and gender in chronic pain, inviting all genders to join the conversation. While chronic pain may affect individuals differently, this event will outline what we now know about sex and gender as variables in chronic pain, what impact the outcomes of the PAINDIFF network will have on the study of sex and gender in pain and how this may inform on diagnosis and treatment outcomes for everyone.
Building Connections Programme
The Building Connections programme was a research initiative facilitated by PPI (public and patient involvement) Ignite Network in collaboration with MDI. This programme ran over three weeks from 31 October to 14 November