“I have been staying at the MDI Home from Home apartment since 2015” - Meet Shelley Cowan
I have been staying at the MDI Home from Home apartment since 2015. I live Dublin and I’m from Enniskillen County Fermanagh. I was confined to bed for 12 years and a wheelchair user for a decade – MDI has been brilliant to be able to go somewhere that I know everything I need a there.
Disability Federation of Ireland Partners with European Colleagues on NewIN-HABIT Inclusive Housing Project
The Disability Federation of Ireland are working alongside European partners on the IN-HABIT project. DFI is a federation of member organisations working with people with disabilities to implement the UN CRPD and ensure their equal participation in society. MDI aswell as other charities that provide advice and support to people with disabilities are member organsation are a part of DFI. The goal of the IN-HABIT project is to foster inclusive housing solutions by strengthening the capacity of housing professionals, service providers, and local authorities to support people with disabilities. The target groups of this partnership are Housing professionals, Service providers for people with disabilities, Local authority professionals and People with disabilities & their circle of support members.
The National Rare Disease Strategy Implementation Oversight Group Is Seeking Two Members With Lived Experience
This Expression of Interest Form invites interest from those who are interested in the future of rare disease services in Ireland through contributing to the work of the IOG, and who have experience accessing these services, live with or care for someone with a rare disease, or are interested in contributing in a tangible way to the development and implementation of more trusted, and more efficient, relevant rare disease services and research in Ireland.
FOR IMMEDIATE RELEASE: MDI & AIPF Power a New Era of Inclusive Football: Launched by Minister for Culture, Communications and Sport Patrick O'Donovan TD.
Muscular Dystrophy Ireland (MDI), the national charity supporting people living with neuromuscular conditions, celebrated the arrival of six Football Power Chairs, funded by the UEFA Children’s Foundation, and Lord’s Taverners Ireland/RevUp and in partnership with the Football Association of Ireland (FAI).
🚐 MDI Vehicle Now Available in Southern Ireland for short-term loans
This vehicle will be available to service users in the Southern region for short-term loan spells, subject to terms and conditions. The aim is to support access to medical, clinical, and other essential journeys where possible.
Atom Folding Lightweight Scooter: Exciting New Equipment Enhancing MDI’s Transport and Equipment Service
At Muscular Dystrophy Ireland (MDI), we are always striving to improve the mobility, independence, and daily experiences of our members. This month, we are delighted to announce two fantastic additions to our Transport and Equipment Service — both acquired with our service users’ needs in mind. Whether you are looking for temporary mobility support or require specialist equipment for safe travel, these new options are here to help.
New Equipment Alert: OMBRELO™ Special-Needs Stroller Now Available on MDI Transport (Size 3)
Muscular Dystrophy Ireland (MDI) is pleased to announce that a Size 3 OMBRELO™ special-needs stroller is now available for use through the MDI Transport Service. This equipment will be used exclusively in MDI vehicles, providing enhanced comfort, postural support, and safe, reliable travel for service users who require additional assistance during journeys.
Celebrating a Game-Changing Boost for Powerchair Football in Ireland
The launch at the National Sports Campus was attended by Minister for Sport Patrick O’Donovan and FAI CEO David Courell, underlining strong leadership support for disability inclusion in sport. Funded by the UEFA Children’s Foundation and Lord’s Taverners Ireland / RevUp, in partnership with the FAI
Save the Date – Barretstown Family Camp 2026!
This very special weekend offers families living with neuromuscular conditions the opportunity to come together in a safe, inclusive and supportive environment, with a programme of fun activities, shared experiences and much-needed time to connect.
A Day of Connection: Thank You for Making Our 2025 National Conference So Special
Thank you so much to all who attended the 2025 National Connection Conference this year. We are so grateful we got to meet so many members, experts and supporters on the day. We are incredibly grateful to our sponsors, who make days like these possible: Biogen Roche Novartis
Proposed Cost Of Disability Payment: Everything you need to know
Proposed Cost Of Disability Payment: Everything you need to know. Over the last few weeks, there has been a lot of talk about a proposed cost of disability payment, so let's break down all the details we know so far.
It is unclear what the payment will consist of, but according to an Indecon report in 2021, additional Costs of Disability averaged between €9,482 - 11,734 per year.
Happy Christmas from Muscular Dystrophy Ireland: A Message of Reflection, Gratitude, and Hope This Christmas
As we approach the Christmas season, we are mindful of those in our community who are remembering loved ones who have passed and for whom this time of year can bring many mixed emotions. We extend our sympathy and hope the season goes gently for you. Please remember that Muscular Dystrophy Ireland (MDI) is here for you should you wish to avail of support.
Duchenne Muscular Dystrophy (DMD) Paediatric and Adult Care Pathway Published
The pathway outlines recommendations for the key specialists and services involved in DMD care, supporting coordinated and consistent care for children, young people and adults living with DMD.
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[Press Release] Minister for Health Speaks at Muscular Dystrophy Ireland National Conference at Croke Park
Muscular Dystrophy Ireland (MDI) held its national conference today at Croke Park, with Minister for Health Jennifer MacNeill officially speaking at the event. The conference brought together people living with muscular dystrophy and related neuromuscular conditions, along with their families, clinicians, researchers, and disability advocates from across the country.
Check out this helpful video on how to access the CHANGING PLACES TOILET at the Cusack Suite, Croke Park for our conference on 7 December 2025.
Planning to join us at our conference on 7 December? We want to ensure all our attendees have a smooth and accessible experience! Check out this helpful video on how to access the CHANGING PLACES TOILET at the Cusack Suite, Croke Park
Check out this helpful video on how to access the car park and Cusack Suite, Croke Park for our conference on 7 December 2025.
Planning to join us at our conference on 7 December? We want to ensure all our attendees have a smooth and accessible experience! Check out this helpful video on how to access the car park and Cusack Suite, Croke Park:
🎄 Spread Some Festive Cheer with MDI Christmas Cards!
Buying MDI Christmas cards directly supports Muscular Dystrophy Ireland and helps to fund our support services for people with neuromuscular conditions across Ireland and their families..
🚨 Final call! The last day to book your child’s place at Muscular Dystrophy Ireland’s Conference is Friday, 14 November!
Join us at Croke Park on Saturday, 7 December, for a fantastic day filled with connection, fun, and learning. Don’t miss this amazing opportunity for: Youth Programme – ages 8–17 and Children’s Programme – ages 5–7.
Share Your Experience: Help Inform Access to Givinostat for Duchenne Muscular Dystrophy in Ireland
A review is under way to decide if Givinostat for Duchenne muscular dystrophy will be reimbursed in Ireland. Your experience of living with Duchenne can help inform this decision - share your story in the survey link.
Join us at Muscular Dystrophy Ireland's National Conference on 7 December at Croke Park!
Secure your spot now and be part of a powerful day of coming together as a community to share and learn together. Find out more about our exciting programmes and book your place