Become An MDI Member
A Muscular Dystrophy Ireland (MDI) membership offers you the opportunity to be part of a community dedicated to empowering individuals with neuromuscular conditions. As a member, you'll help benefit a range of vital services, including advocacy for full societal participation, family and youth support programs, help our community access to personal assistance , peer-to-peer connections, and counseling. MDI also provides practical resources like transport, equipment loans, and a fully accessible Home-From-Home apartment for short stays. Additionally, you’ll be contributing to ongoing research and national advocacy efforts that aim to improve the lives of those living with neuromuscular conditions.
Our Services
Family Support Programme
Our Family Support Programme offers a variety of supports to people with neuromuscular conditions and their families to assist you in fully participating in society. Our Support Workers provide practical information and local advocacy support on any aspect of living with a neuromuscular condition as well as a supportive listening ear to discuss and explore issues of concern. Areas we provide information and support on include:
· Accessing counselling and Play Therapy Services
· Accessing (short-term) emergency personal assistance service
· Organising well-being, educational and social peer-to-peer support events
· Supporting you in relation to your rights, entitlements, and financial assistance – such as accessing the carer’s allowance or medical card
· Supporting you on issues relating to education and employment
· Securing disability equipment
· Assisting with transport needs – such as securing a primary medical cert and accessible transport
· Assisting with applications towards accessing suitable housing – such as securing accommodation, adjustments to the home
· Providing support to parents and extended family
· Developing independence and confidence skills
· Making referrals to other agencies and services where relevant
Family Support Programme
Our Family Support Programme offers a variety of supports to people with neuromuscular conditions and their families to assist you in fully participating in society. Our Support Workers provide practical information and local advocacy support on any aspect of living with a neuromuscular condition as well as a supportive listening ear to discuss and explore issues of concern.
Counselling Services
We offer short-term counselling free of charge, delivered by a team of qualified therapists with expertise in areas such as adult counselling, adolescent counselling, play therapy, music therapy, and art therapy. Our therapists have experience supporting people with neuromuscular conditions and their families and can tailor sessions to meet your individual needs.
Clinic Liaison Service
The Clinic Liaison Officer works closely with hospitals and medical teams as a primary point of contact for both medical professionals into MDI and members to their medical team, building strong mutual working relationships with MDT’s within clinic settings, recognizing and addressing gaps in support, creating awareness and access to supports ensuring that every person living with a neuromuscular condition in Ireland is aware of MDI’s services and has full access to these.
Personal Assistance (PA) Service
In emergencies, we can arrange short-term PA support, both at home and in the community.
Youth Service
We aim to support, encourage, and enable young members to grow, develop and achieve their full potential. We run national and regional programmes for children and young people that focus on empowerment, building confidence, and creating peer connections.
Learning and Development Programme
This programme supports MDI’s National Advocacy Committee and works on advocacy at a national level with and on behalf of people with neuromuscular conditions on policy and decisions that affect members of our community as a whole, while also organising learning events such as our national conference.
Community Connection and Wellbeing Programmes
Some of the supports we offer are WhatsApp groups, member led coffee morning’s, Siel Bleu which involves 1:1 & group exercise sessions along with nutritional information. We host online and in-person peer groups, events, and learning sessions - helping you connect with others living with a neuromuscular condition.
Schools Awareness Programme
Creating awareness to be delivered in schools on a national level to both teachers & pupils, providing transition support for children moving from primary to secondary and into third level.
Assistive Technology Guidance
This programme offers support to members to access the technology that suits them best and enhance their daily living needs.
Independent Living Support
This programme has been developed to assist our younger members to learn some valuable life skills and promote independence to live a life of their own choosing.
Transport and Equipment Loans
We offer (when available) transport to members attending medical appointments from their homes in Dublin-Leinster. Additionally, we offer transport from various rail and bus stations in Dublin for passengers who are attending appointments from outside the Leinster area.. We also have a minibus available for loan to members.. We have a range of equipment available to members for short-to-medium term loans. Equipment includes hoists, ramps, powerchairs, manual wheelchairs, pavement scooters, shower chairs, mattress raisers.
Home from Home Apartment
Our self-catering apartment is located at MDI House, Chapelizod, Dublin 20. It is a self-contained fully accessible apartment which is available to members for short term stay. This four-star-approved self-catering apartment consists of four bedrooms, a kitchen and a lounge area.
Research
We collaborate with researchers and support individuals with lived experience to engage in research activities.
Information and Advocacy Support Line
If you have any questions or need some practical advice, please do not hesitate to contact us. You can talk to one of our dedicated support team on our Information and Advocacy Support Line, +353 01 6236414, from 9am to 5pm, Monday to Friday. You can also send us your query online here https://www.mdi.ie/contact.
By post
Drop an email to respite@mdi.ie and ask for a membership application form to be emailed to you or popped in the post. It’s that easy!