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What we do

Muscular Dystrophy Ireland (MDI) is a support organisation for individuals with muscular dystrophy and their families. The MDI National Resource Centre for Neuromuscular Conditions is located in Chapelizod Dublin and contains the Home from Home Apartment.

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Sell Employment Course for People with Disabilities

Below are details of a course designed for people with disabilities who have a business idea and wish to undertake a training programme that will assist them to evaluate the viability of their business idea and develop their business skills.  For more details see poster below or email: chelsea.hollywood@tudublin.ie Self-Employment-for-People-with-Disabilities-Module

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Powerchair football

Would you like to get involved in powerchair football in the South-East? Wexford-based MDI member, C

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Launch of NAI Report on online service provision across neurological care in response to COVID-19

Today – 22 July – is World Brain Day and the Neurological Alliance of Ireland (NAI) have launche

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Orphan Drugs Bill

Legislation to streamline the HSE decision-making process on orphan drugs We are pleased to see that

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ANNUAL REPORTS AND AUDITED ACCOUNTS

See our reports hereMDI Annual Report 2019

Muscular Dystrophy Society of Ireland Ltd.
75 Lucan Road, Chapelizod, Dublin D20 DR77
Tel: (01) 6236414
Fax: (01) 6208663
Email: info@mdi.ie

Registered Charity Number: 20012038
CHY Charity Number: 6849
Company Number: 60460
Country of registration: Ireland

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Cavan, Monaghan, Louth Head Office - Dublin, Kildare, Wicklow Cork and Kerry Carlow, Kilkenny, Waterford, Wexford and Tipperary South Clare, Limerick and Tipperary North Laois, Longford, Offaly & Westmeath Galway, Mayo & Roscommon Donegal, Sligo, Leitrim

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy - General
  • • MDC1A (merosin-deficient congenital muscular dystrophy)
  • • Rigid spine syndrome (RSS)
  • • Ullrich congenital muscular dystrophies
  • • Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositides

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD) - General
  • • LGMD 1B (also known as Laminopathy)
  • • LGMD 1C (also known as Caveolinopathy)
  • • LGMD 2A (also known as Calpainopathy)
  • • LGMD 2B (also known as Dysferlinopathy)
  • • LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

12. Other (Please Specify)

13. Unspecified