A man walking outdoors with two women in wheelchairs, smiling and enjoying a sunny day in a park with trees and buildings in the background.
Two women holding signs about heel pricks and disease screening in Ireland and Europe, standing outdoors in front of a building with multiple windows.
Three people standing together at a Muscular Dystrophy Ireland event, with a green and white backdrop displaying the organization’s logo and words related to youth service, clinic liaison, advocacy, and information line.
Group of six people, including a young man in a wheelchair, standing and sitting outside a building with glass doors, smiling and posing for a photo during a marathon event, wearing athletic apparel and race bibs.
Group of five people, including three in wheelchairs, in a room with green and orange decor and balloons. Two women stand behind two seated individuals with wheelchairs, all smiling for a photo. The background has words like 'Home from Home,' 'Transi
A group of fifteen people, including children and adults, posing outdoors in front of a beige wall with greenery and trees behind them. They are arranged mostly standing with some sitting. The sky above is partly cloudy.
Group photo of diverse individuals, including several in wheelchairs, in a conference room or similar setting.
A white disability van with a wheelchair lift in a parking lot, surrounded by other parked vans and vehicles, with houses and trees in the background.
A young girl sitting in a red Ferrari convertible, smiling, with other people and children in the background outdoors on a sunny day.
Group of six people standing in front of a colorful butterfly mural on a stone wall, with two of the women in wheelchairs and one person on a mobility scooter.

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Latest News

Featured
Today marks the one-year anniversary of the passing of our beloved Jimmy Murray.
Today marks the one-year anniversary of the passing of our beloved Jimmy Murray.

Today marks the one-year anniversary of the passing of our beloved Jimmy Murray.

We honoured his memory today in our head office by coming together for his lunchtime favourite, a big fry-up.

We were also joined by his sister Orlaigh, and we shared fond memories of her brother and our friend.

The fund set up in his name, "The Jimmy Murray Centre Stage Fund," continues to grow thanks to donations kindly received and is still going strong, with our members able to enter a monthly raffle to win tickets to see a show in his name.

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The Remembrance Tournament 2026: A milestone event for Powerchair Football in Ireland
The Remembrance Tournament 2026: A milestone event for Powerchair Football in Ireland

Over two days (15–16 August), the National Sport Ireland Indoor Arena in Abbotstown hosted a landmark occasion for the Powerchair Football community, as the Remembrance Cup and the Marc Bigger Memorial Cup combined into a single, expanded event featuring 10 teams and 47 players.

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Get Your Bad Shirt Out: Bad Shirt Friday Returns on 4th September
Get Your Bad Shirt Out: Bad Shirt Friday Returns on 4th September

Bad Shirt Friday is a campaign raising awareness and vital funds for Duchenne Muscular Dystrophy, and this year it comes with a brilliant twist: an exclusive gig featuring The Bonnevilles, with support from Stafel. All profits from the night go directly to Muscular Dystrophy Ireland.

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An Irish-italian Marriage, A Delicious Cookbook, And A Tragic Genetic Condition. 
An Irish-italian Marriage, A Delicious Cookbook, And A Tragic Genetic Condition. 

However successful or high-achieving someone seems, you never know what problems or suffering they may have privately faced. When I was a schoolgirl in Dublin many years ago, the cleverest girl we knew was called Paula Eagar. To the envy of the rest of us, Paula always came first in everything, acing every exam, and was held up as a model pupil by the Loreto nuns.

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Muscular Dystrophy Ireland Statement on Skyclarys Decision
Muscular Dystrophy Ireland Statement on Skyclarys Decision

Muscular Dystrophy Ireland stands firmly with every person and family in Ireland living with Friedreich’s ataxia following yesterday’s recommendation by the HSE Drugs Group that Skyclarys should not be funded through the public health system. For people living with Friedreich’s ataxia, this is not simply a decision about a medicine or a budget. It is about time, opportunity, quality of life, and hope. Skyclarys is the first treatment approved for Friedreich’s ataxia, a rare, progressive and life-limiting condition. The possibility of a treatment that may alter or slow the progression of this disease is therefore profoundly important.

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Looking Back at Q2: Active Disability Ireland News & Updates

Active Disability Ireland has had a busy quarter, with a refreshed inclusion charter, a national awards ceremony, new board appointments, a major policy consultation, and continued progress on research and training. Here's a full round-up.

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Meet the Condition Behind Walk4Ollie: Bethlem Myopathy Explained
Meet the Condition Behind Walk4Ollie: Bethlem Myopathy Explained

With Walk4Ollie coming up, we wanted to share the impact of Bethlem Myopathy, a form of Muscular Dystrophy. You can support us in helping members like Ollie by donating, sharing, and joining us on the 26th of September for this year's Walk4Ollie! Contact foundation@mdi.ie for more information.

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MDI's High-speed day at Mondello Park – 2026
MDI's High-speed day at Mondello Park – 2026

On the 1st of July 2026, 30 racers joined MDI for a fun, fast day at Mondello Park. MDI have proudly partnered with Mondello Park since 2021.. The brave racers got behind the wheel of high-performance electric cars before taking the passenger seat for a once-in-a-lifetime Porsche experience. Accompanied by an experienced driver, they enjoyed a thrilling high-speed lap around Mondello's famous 3.5 km international racetrack. It was a day packed with adrenaline, speed and excitement!

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MDI Announces 2026 AGM for 5 September — Constitution Vote and Board Elections on Agenda
MDI Announces 2026 AGM for 5 September — Constitution Vote and Board Elections on Agenda

Muscular Dystrophy Ireland has issued notice of its 2026 Annual General Meeting, to be held online via Zoom on Saturday, 5 September at 12 noon.

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We're Hiring: Quality & Governance Lead
We're Hiring: Quality & Governance Lead

MDI is seeking a Quality & Governance Lead to join our team on a part-time, fixed-term basis (17.5 hours per week). This is a key role supporting the CEO, Senior Management Team, and Board Committees in strengthening governance, quality assurance, and compliance across the organisation, helping MDI maintain best practice as we continue to grow and evolve.

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Win a Stay at Teach Susie: MDI's Accessible Donegal Holiday Home Raffle
Win a Stay at Teach Susie: MDI's Accessible Donegal Holiday Home Raffle

This October mid-term, one lucky MDI member could be packing their bags for a break by the sea. MDI is raffling off two four-night stays at Teach Susie, a fully accessible holiday home in the seaside village of Portnoo, Co. Donegal

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Assistive Technology News Monthly: August 2026
Assistive Technology News Monthly: August 2026

The August edition of MDI's Assistive Technology Monthly Update is here. This month we invite members to register for an online workshop on 9th September exploring the built-in accessibility features of Windows, iOS and Android, covering touchscreen customisation, hands-free access, and Smart Home technology. We also feature the inspiring story of the Kellycaster, a guitar built bespoke to a disabled musician's access needs, alongside adaptive guitar techniques for disabled players. Our Product Spotlight this month looks at smart sockets, and the resources section rounds up adaptive tools for fishing, kayaking, crafting, and music, from hands-free rod holders to fully customisable Bluetooth switches.

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  • Our vision

    MDI envisages an Ireland that enables people with neuromuscular conditions to fully participate in society and reach their full potential.

  • Our mission

    Using a member-centred approach, we provide information and support to people with neuromuscular conditions and their families through a range of support services. Advocating for services and entitlements for members; Educating and informing society about neuromuscular conditions and supporting researchers and clinicians to carry ourt quality research into neuromuscular conditions.

  • Our values

    1. Respect and empathy

    We seek to build relationships based on respect and empathy.

  • Our values

    2. Transparency and integrity

    We carry out all our work to the highest standards, underpinned by honesty, accountability and consistency.

  • Our values

    3. Equality and fairness

    We are committed to equality and fairness and to ensuring the right to equal access to services based on the needs of the individual.

  • Our values

    4. Inclusiveness

    We strive to be inclusive, valuing and respectful of diversity.

  • Our values

    5. Personal empowerment

    We believe personal empowerment is about being able to make choices and having a voice.

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