A man walking outdoors with two women in wheelchairs, smiling and enjoying a sunny day in a park with trees and buildings in the background.
Two women holding signs about heel pricks and disease screening in Ireland and Europe, standing outdoors in front of a building with multiple windows.
Three people standing together at a Muscular Dystrophy Ireland event, with a green and white backdrop displaying the organization’s logo and words related to youth service, clinic liaison, advocacy, and information line.
Group of six people, including a young man in a wheelchair, standing and sitting outside a building with glass doors, smiling and posing for a photo during a marathon event, wearing athletic apparel and race bibs.
Group of five people, including three in wheelchairs, in a room with green and orange decor and balloons. Two women stand behind two seated individuals with wheelchairs, all smiling for a photo. The background has words like 'Home from Home,' 'Transi
A group of fifteen people, including children and adults, posing outdoors in front of a beige wall with greenery and trees behind them. They are arranged mostly standing with some sitting. The sky above is partly cloudy.
Group photo of diverse individuals, including several in wheelchairs, in a conference room or similar setting.
A white disability van with a wheelchair lift in a parking lot, surrounded by other parked vans and vehicles, with houses and trees in the background.
A young girl sitting in a red Ferrari convertible, smiling, with other people and children in the background outdoors on a sunny day.
Group of six people standing in front of a colorful butterfly mural on a stone wall, with two of the women in wheelchairs and one person on a mobility scooter.

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Latest News

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MDI Vehicle Now Available in Southern Ireland for short-term loans
MDI Vehicle Now Available in Southern Ireland for short-term loans

This vehicle will be available to service users in the Southern region for short-term loan spells, subject to terms and conditions. The aim is to support access to medical, clinical, and other essential journeys where possible.

One map. Every resource. Find accessible services near you with MDI InfoMap
One map. Every resource. Find accessible services near you with MDI InfoMap

Did you know MDI has a free interactive map packed with accessibility resources? From wheelchair accessible taxis and Changing Places toilets, to Irish Rail station accessibility and SpaceFinder parking apps, the MDI InfoMap brings it all together in one place. Wherever you're headed, we want to help you get there.

Liz Dickson on the experience of Barretstown with MDI and what it meant for their family
Liz Dickson on the experience of Barretstown with MDI and what it meant for their family

We've had the pleasure of going to Barrettstown twice now with MDI and it's been such a great experience. For Tommy and Grace, going somewhere that's so child and family-centred and completely accessible is really joyful. The activities are so engaging and fun. They loved trying archery and horse riding, but I think kayaking was a real highlight for them.

Can you take one quick action? Urgent access to Givinostat for boys with DMD
Can you take one quick action? Urgent access to Givinostat for boys with DMD

It is now one year since Givinostat was approved by the European Medicines Agency, yet Irish boys with Duchenne muscular dystrophy are still waiting for access to this life-changing treatment. We are asking you to email your local TDs and senators to urge their support to secure urgent access to Givinostat. 

[RTÉ News] 'Time is muscle' - decision urged on rare disease medicine
[RTÉ News] 'Time is muscle' - decision urged on rare disease medicine

The parents of a child with a rare muscular disease are urging that the State does "not delay any longer" in making decisions on access to a drug that has been approved for use in Europe but has not been approved for reimbursement in Ireland.

[RTÉ News] Father of rare disease patient fears losing second son
[RTÉ News] Father of rare disease patient fears losing second son

Patients with rare diseases and their families travelled to Leinster House to call for action on access to new medicines.The group is calling on the Government to introduce a dedicated new line item in the Budget for new drugs, a review of the reimbursement scheme and an expansion of the Early Access Programme.

How I Learned to Drive from My Wheelchair and Why It Changed Everything.
How I Learned to Drive from My Wheelchair and Why It Changed Everything.

Emer drives her wheelchair-adapted car independently — from the button on her keys that automatically opens the back door and deploys the ramp, to the hand controls and dial system that put everything within reach.

Caoimhe Boers: How the iPad paved the way for me as an Artist
Caoimhe Boers: How the iPad paved the way for me as an Artist

For as long as I can remember, I’ve loved stories, animation, fairy tales, and illustration. Growing up, I never really saw myself as “artistic” in the traditional sense. Because of reduced mobility in my hands and arms, drawing with pencil and paper was difficult for me. Things like shading, controlling fine movements, or reaching across a page could be frustrating.

The 4th of June is Assistive Technology Day! A.T Monthly Update June 2026
The 4th of June is Assistive Technology Day! A.T Monthly Update June 2026

World Day for Assistive Technology, on June 4, 2026, is the perfect opportunity for everyone— individuals, organizations, businesses, and policymakers from across the world—to come together and champion the importance of assistive technology. The goal? To increase access and raise awareness, especially in low- and middle-income countries.

Vote for MDI in the AIB Community €1M Fund!
Vote for MDI in the AIB Community €1M Fund!

Please complete the nomination form between now and 19th June at 5pm to nominate MDI to receive part of AIB's Community €1M Fund to support our services. 

Sharing Jake’s experience, Elaine O’Dwyer highlights the value of connection and community through MDI’s Youth Service 
Sharing Jake’s experience, Elaine O’Dwyer highlights the value of connection and community through MDI’s Youth Service 

“MDI’s youth service and youth clubs have meant so much to our family. Through the service, our 12-year-old son has had the opportunity to build friendships and grow in confidence.”

The Hubert Assistive Technology Programme Monthly Update May 2026
The Hubert Assistive Technology Programme Monthly Update May 2026

The Hubert Assistive Technology support service offers individualised support to members with a neuromuscular condition by providing them with valuable information, support, and advocacy on how to secure smart technologies that can assist members to improve challenges faced in their everyday lives. Our aim is to create a supportive environment where individuals with a neuromuscular condition can thrive and achieve their full potential. People with disabilities face a variety of challenges, be it at home, in education, employment, healthcare, social isolation, independent living, and funding, we want to assist members in getting assistive technology to help them with these areas. We will contact you to follow up.

GO TO NEWS SECTION

  • Our vision

    MDI envisages an Ireland that enables people with neuromuscular conditions to fully participate in society and reach their full potential.

  • Our mission

    Using a member-centred approach, we provide information and support to people with neuromuscular conditions and their families through a range of support services. Advocating for services and entitlements for members; Educating and informing society about neuromuscular conditions and supporting researchers and clinicians to carry ourt quality research into neuromuscular conditions.

  • Our values

    1. Respect and empathy

    We seek to build relationships based on respect and empathy.

  • Our values

    2. Transparency and integrity

    We carry out all our work to the highest standards, underpinned by honesty, accountability and consistency.

  • Our values

    3. Equality and fairness

    We are committed to equality and fairness and to ensuring the right to equal access to services based on the needs of the individual.

  • Our values

    4. Inclusiveness

    We strive to be inclusive, valuing and respectful of diversity.

  • Our values

    5. Personal empowerment

    We believe personal empowerment is about being able to make choices and having a voice.

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