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Muscular Dystrophy Ireland (MDI) is a support organisation for individuals with muscular dystrophy and their families. The MDI National Resource Centre for Neuromuscular Conditions is located in Chapelizod Dublin and contains the Home from Home Apartment.

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Update on AstraZeneca vaccine and vaccination programme

All vaccination appointments on 13 April cancelled As you may be aware, the HSE announced that all AstraZeneca COVID-19 vaccination appointments planned for today, Tuesday, 13 April have been cancelled. If you had an appointment to get the AstraZeneca COVID-19 vaccine today, you will be contacted to rearrange your appointment. The HSE is now assessing […]

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Self Care Course for Carers

MDI INTRODUCTION TO SELF CARE AND SELF COMPASSION 8 session course for Carers & Parents. Beginni

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Self Care Course for Members

MDI INTRODUCTION TO SELF CARE AND SELF COMPASSION 8 week course for members with muscular dystrophy.

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Parent Project MD Conference

Parent Project Muscular Dystrophy Conference Registration is now open for this year’s Parent P

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ANNUAL REPORTS AND AUDITED ACCOUNTS

See our reports hereMDI Annual Report 2019

Muscular Dystrophy Society of Ireland Ltd.
75 Lucan Road, Chapelizod, Dublin D20 DR77
Tel: (01) 6236414
Fax: (01) 6208663
Email: info@mdi.ie

Registered Charity Number: 20012038
CHY Charity Number: 6849
Company Number: 60460
Country of registration: Ireland

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Cavan, Monaghan, Louth Head Office - Dublin, Kildare, Wicklow Cork and Kerry Carlow, Kilkenny, Waterford, Wexford and Tipperary South Clare, Limerick and Tipperary North Laois, Longford, Offaly & Westmeath Galway, Mayo & Roscommon Donegal, Sligo, Leitrim

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy - General
  • • MDC1A (merosin-deficient congenital muscular dystrophy)
  • • Rigid spine syndrome (RSS)
  • • Ullrich congenital muscular dystrophies
  • • Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositides

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD) - General
  • • LGMD 1B (also known as Laminopathy)
  • • LGMD 1C (also known as Caveolinopathy)
  • • LGMD 2A (also known as Calpainopathy)
  • • LGMD 2B (also known as Dysferlinopathy)
  • • LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

12. Other (Please Specify)

13. Unspecified