In November, MDI, in collaboration with Duchenne families, launched a survey to capture the lived experience of families living with Duchenne muscular dystrophy to support the patient submission for the reimbursement of givinostat. We would like to say a heartfelt thank you to everyone who took the time to participate.

As the only fully accessible, self-catered apartment in Ireland, the MDI Home from Home apartment is an essential and invaluable resource for our members and members of the public with accessibility needs.

Care Alliance Ireland has published a new Position Paper making the case for exempting Carer's Allowance and Carer's Benefit from income tax in the Republic of Ireland. The paper was presented directly to An Tánaiste, Simon Harris, during a meeting at Government Buildings yesterday.

Action Duchenne will host a special online event, Women's Health: Genetics and Decisions, on Monday 9th March 2026 from 6–7pm, marking International Women's Day 2026 with a spotlight on the often-overlooked needs of Duchenne carriers.

Siel Bleu currently provide our one-to-one physical training and nutrition programmes, along with our online group exercise classes. These pool sessions are a great addition to the Siel Bleu offering for MDI, expanding opportunities for accessible, water-based exercise in a supportive setting.

The coaching programme offers structured conversations that help you surface deeper insights from your head, heart, and gut, define what matters, and move with intention. It’s a space to “use the difficulty”—turning friction, uncertainty, or feeling stuck into learning and forward motion.

With just one match day left the AIPF Premier League has come down to the last day with not two but three teams in serious contention to take the trophy home. A convincing 3-1 win for Heroes Cork in their latest round of matches against longtime rivals Midlands United put them into pole position with a slight lead over Midlands and reigning champions Belfast Trailblazers leading into the final round of fixtures on March 7th.

The Board determine the annual membership fee and notify members of same and date of payment each year. The Board have agreed an annual membership fee of €15 for all member categories and the closing date for ‘full’ membership entitlements for the current year as 31 March 2026. Annual membership runs from January to December.

Many individuals living with neuromuscular conditions in Ireland are not aware that support is available to them and diagnosis can sometimes be delayed.