Created in memory of our much loved and much missed colleague.Jimmy believed in making the most of every opportunity and never saw disability as a reason to remain waiting in the wings when life had something to offer. Whether attending theatre, comedy, football, or social events, he approached each experience with determination, humour, and a strong sense of enjoyment, always finding a way to be part of the occasion.

This training explores how disclosures can be navigated safely, respectfully, and in line with equality legislation.Participants will gain practical tools to respond appropriately, create psychologically safe environments, and understand the legal responsibilities organisations have when someone shares personal information. 

The GetAHEAD programme at AHEAD is excited to offer a free online workshop on the topic of Disclosing your Disability in the Workplace!

FARA Ireland's April 2026 Advocacy Bulletin details the latest steps being taken to secure reimbursement of SKYCLARYS for people living with Friedreich's Ataxia in Ireland. Download the full bulletin for an update on where things stand.

Emily Felix (28) has remained hopeful and “motivated” that one day a treatment would become available for the rare disease that has shaped her world. Felix, from Kilkenny, was diagnosed with Friedreich’s ataxia (FA) at the age of 12, one of only 200 people with the condition in the country.

Muscular Dystrophy Ireland warmly welcomes the introduction of testing for spinal muscular atrophy (SMA), commencing today as part of the expansion of the National Newborn Bloodspot Screening Programme

Our annual conference took place at Croke Park this year under the theme of 'Connection' — and what a day it was. Members, experts and supporters came together for a series of workshops and sessions, and we're delighted to now share the full video recordings so you can revisit the highlights or catch up on anything you missed.

Caroline Cahill from Kilkenny knows how difficult it can be to find fully accessible accommodation in Dublin. Thanks to MDI's Home from Home apartment, she and her family can visit the capital with confidence — and make memories along the way, from trips to Dublin Zoo to exploring the city centre. Watch Caroline share her experience in her own words.

Participants will gain: Enhanced knowledge of muscular dystrophy and related neuromuscular conditions. Insight into the barriers and challenges that students living with these conditions may experience. Practical strategies for fostering an inclusive and supportive learning environment.