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This training explores how disclosures can be navigated safely, respectfully, and in line with equality legislation.Participants will gain practical tools to respond appropriately, create psychologically safe environments, and understand the legal responsibilities organisations have when someone shares personal information.
The GetAHEAD programme at AHEAD is excited to offer a free online workshop on the topic of Disclosing your Disability in the Workplace!
FARA Ireland's April 2026 Advocacy Bulletin details the latest steps being taken to secure reimbursement of SKYCLARYS for people living with Friedreich's Ataxia in Ireland. Download the full bulletin for an update on where things stand.
Emily Felix (28) has remained hopeful and “motivated” that one day a treatment would become available for the rare disease that has shaped her world. Felix, from Kilkenny, was diagnosed with Friedreich’s ataxia (FA) at the age of 12, one of only 200 people with the condition in the country.
Muscular Dystrophy Ireland warmly welcomes the introduction of testing for spinal muscular atrophy (SMA), commencing today as part of the expansion of the National Newborn Bloodspot Screening Programme
Our annual conference took place at Croke Park this year under the theme of 'Connection' — and what a day it was. Members, experts and supporters came together for a series of workshops and sessions, and we're delighted to now share the full video recordings so you can revisit the highlights or catch up on anything you missed.
Caroline Cahill from Kilkenny knows how difficult it can be to find fully accessible accommodation in Dublin. Thanks to MDI's Home from Home apartment, she and her family can visit the capital with confidence — and make memories along the way, from trips to Dublin Zoo to exploring the city centre. Watch Caroline share her experience in her own words.
MDI is exploring the possibility of running an online art class and/or an online mindful gardening session. MDI would like to support wellbeing and mental health, through therapeutic activities in the form of online classes in possible Art and Garden, the therapeutic benefits of these can help relieve stress, and promote relaxation.
A lot has happened recently regarding clinical trials for Duchenne Muscular Dystrophy, and Becker Muscular Dystrophy (Hereafter referred to as Duchenne and Becker). All of these updates are from the American Muscular Dystrophy Association Clinical & Scientific Conference in Orlando that took place from March 8th - 11th let’s start with an update from a Becker Trial.
Participants will gain: Enhanced knowledge of muscular dystrophy and related neuromuscular conditions. Insight into the barriers and challenges that students living with these conditions may experience. Practical strategies for fostering an inclusive and supportive learning environment.
Following the wonderful success of their previous event, The Disability Show is building something even bigger and better this time – with more exhibitors, informative talks, networking opportunities, and a continued focus on accessibility, inclusion, and empowerment. Whether you're an organisation supporting people with disabilities, a service user, advocate, family member, or simply passionate about making a difference – this event is for you.
Following the wonderful success of their previous event, Disability Show is building something even bigger and better this time – with more exhibitors, informative talks, networking opportunities, and a continued focus on accessibility, inclusion, and empowerment. Whether you're an organisation supporting people with disabilities, a service user, advocate, family member, or simply passionate about making a difference – this event is for you.
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Our vision
MDI envisages an Ireland that enables people with neuromuscular conditions to fully participate in society and reach their full potential.
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Our mission
Using a member-centred approach, we provide information and support to people with neuromuscular conditions and their families through a range of support services. Advocating for services and entitlements for members; Educating and informing society about neuromuscular conditions and supporting researchers and clinicians to carry ourt quality research into neuromuscular conditions.
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Our values
1. Respect and empathy
We seek to build relationships based on respect and empathy.
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Our values
2. Transparency and integrity
We carry out all our work to the highest standards, underpinned by honesty, accountability and consistency.
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Our values
3. Equality and fairness
We are committed to equality and fairness and to ensuring the right to equal access to services based on the needs of the individual.
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Our values
4. Inclusiveness
We strive to be inclusive, valuing and respectful of diversity.
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Our values
5. Personal empowerment
We believe personal empowerment is about being able to make choices and having a voice.
Our Services
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Youth Service
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Equipment Loans
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Counselling and Bereavement
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Adult Peer Connection
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Family Support Services
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Transport Service
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Home From Home
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Advocacy
Our Impact
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Ollie's Walk for MDI
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AIPF – Irish Powerchair Football Team
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Dr John Roche Education Bursary
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2024