A man walking outdoors with two women in wheelchairs, smiling and enjoying a sunny day in a park with trees and buildings in the background.
Two women holding signs about heel pricks and disease screening in Ireland and Europe, standing outdoors in front of a building with multiple windows.
Three people standing together at a Muscular Dystrophy Ireland event, with a green and white backdrop displaying the organization’s logo and words related to youth service, clinic liaison, advocacy, and information line.
Group of six people, including a young man in a wheelchair, standing and sitting outside a building with glass doors, smiling and posing for a photo during a marathon event, wearing athletic apparel and race bibs.
Group of five people, including three in wheelchairs, in a room with green and orange decor and balloons. Two women stand behind two seated individuals with wheelchairs, all smiling for a photo. The background has words like 'Home from Home,' 'Transi
A group of fifteen people, including children and adults, posing outdoors in front of a beige wall with greenery and trees behind them. They are arranged mostly standing with some sitting. The sky above is partly cloudy.
Group photo of diverse individuals, including several in wheelchairs, in a conference room or similar setting.
A white disability van with a wheelchair lift in a parking lot, surrounded by other parked vans and vehicles, with houses and trees in the background.
A young girl sitting in a red Ferrari convertible, smiling, with other people and children in the background outdoors on a sunny day.
Group of six people standing in front of a colorful butterfly mural on a stone wall, with two of the women in wheelchairs and one person on a mobility scooter.

Quick Links

About
Donate
Our Services
Conditions
Frequently Asked Questions
Host An Event

Information and Advocacy Support Line +353 01 6236414

Check out the MDI’s Info Map >> InfoMap | Locate Support and Services Now 

Latest News

Featured
Donahies Community School Students Score Big for Muscular Dystrophy Ireland!
Donahies Community School Students Score Big for Muscular Dystrophy Ireland!

The MDI Team were delighted to be invited to Donahies Community School, Co. Dublin to give a talk to some of its students about Muscular Dystrophy Ireland and to also thank them for fundraising for us.

Opportunity for young people aged 14 to 17 - Join UNICEF Ireland Youth Action Group!
Opportunity for young people aged 14 to 17 - Join UNICEF Ireland Youth Action Group!

UNICEF Ireland is launching a Youth Action Group, bringing together a small group of young people from across the country to share ideas, learn about youth activism and children’s rights, as well as helping to shape their advocacy work for young people and contributing to conversations and campaigns on issues affecting young people today.

[RTE] Muscular Dystrophy – One family’s experience 
[RTE] Muscular Dystrophy – One family’s experience 

Parents of children with Duchene Muscular Dystrophy are continuing to campaign for access to a new game-changing drug. Michael Brogan, who's son Fionn has this rare muscle-wasting condition spoke to David. Also Fianna Fáil Senator Teresa Costello who has been involved in this campaign.

Webinar to Shine a Light on the Vital Role of Neurology Nurses as Brain Awareness Week Gets Underway
Webinar to Shine a Light on the Vital Role of Neurology Nurses as Brain Awareness Week Gets Underway

A webinar will take place on Monday, 16 March to launch a national awareness campaign, #MyNeurologyNurseAndMe -  highlighting the Vital Role of Nurse Specialists in Neurological Care. Organised by the Neurological Alliance of Ireland as part of National Brain Awareness Week

Passion, Pride & Champions: Team MDI Honoured to Witness the AIPF League Final
Passion, Pride & Champions: Team MDI Honoured to Witness the AIPF League Final

Some of Team MDI were lucky enough to be invited, by the AIPF board, to the decider of the league in Gormanstown park on Saturday 7th of March 2026.

Your Experience Matters: Share Your Diagnosis Story
Your Experience Matters: Share Your Diagnosis Story

We’re inviting members to share their path to diagnosis - particularly if you experienced a long, difficult, or uncertain path to getting answers. We know that many of our members have had challenging journeys to reach a diagnosis, and sharing those experiences can make a real difference in improving understanding among our members and healthcare professionals.

The VHI Women's Mini-Marathon 2026 is open for registrations & we are recruiting for Team MDI
The VHI Women's Mini-Marathon 2026 is open for registrations & we are recruiting for Team MDI
New Changing Places Toilet at St James's Hospital!
New Changing Places Toilet at St James's Hospital!

We are delighted to share good news that a brand-new Changing Places Toilet has been installed at the Cardiac Respiratory Building, just a 2-minute roll or walk from the main concourse at St James's Hospital, Dublin.

NCPE Completes Givinostat Review: What It Means for Duchenne Families
NCPE Completes Givinostat Review: What It Means for Duchenne Families

In November, MDI, in collaboration with Duchenne families, launched a survey to capture the lived experience of families living with Duchenne muscular dystrophy to support the patient submission for the reimbursement of givinostat. We would like to say a heartfelt thank you to everyone who took the time to participate.

Would you like to receive a free night stay at the MDI Home from Home apartment?
Would you like to receive a free night stay at the MDI Home from Home apartment?

As the only fully accessible, self-catered apartment in Ireland, the MDI Home from Home apartment is an essential and invaluable resource for our members and members of the public with accessibility needs.

Care Alliance Ireland Calls for Tax Exemption on Carer's Allowance in New Position Paper
Care Alliance Ireland Calls for Tax Exemption on Carer's Allowance in New Position Paper

Care Alliance Ireland has published a new Position Paper making the case for exempting Carer's Allowance and Carer's Benefit from income tax in the Republic of Ireland. The paper was presented directly to An Tánaiste, Simon Harris, during a meeting at Government Buildings yesterday.

Action Duchenne Webinar Series 2026: Women's Health; Genetics and Decisions
Action Duchenne Webinar Series 2026: Women's Health; Genetics and Decisions

Action Duchenne will host a special online event, Women's Health: Genetics and Decisions, on Monday 9th March 2026 from 6–7pm, marking International Women's Day 2026 with a spotlight on the often-overlooked needs of Duchenne carriers.

GO TO NEWS SECTION

  • Our vision

    MDI envisages an Ireland that enables people with neuromuscular conditions to fully participate in society and reach their full potential.

  • Our mission

    Using a member-centred approach, we provide information and support to people with neuromuscular conditions and their families through a range of support services. Advocating for services and entitlements for members; Educating and informing society about neuromuscular conditions and supporting researchers and clinicians to carry ourt quality research into neuromuscular conditions.

  • Our values

    1. Respect and empathy

    We seek to build relationships based on respect and empathy.

  • Our values

    2. Transparency and integrity

    We carry out all our work to the highest standards, underpinned by honesty, accountability and consistency.

  • Our values

    3. Equality and fairness

    We are committed to equality and fairness and to ensuring the right to equal access to services based on the needs of the individual.

  • Our values

    4. Inclusiveness

    We strive to be inclusive, valuing and respectful of diversity.

  • Our values

    5. Personal empowerment

    We believe personal empowerment is about being able to make choices and having a voice.

Our Services

Our Impact

Get Involved