Please show your support for our Campaign for Equal Access to Treatments for Adults Living with Spinal Muscular Atrophy (SMA) at this crucial time! 

Listen to Emer’s story. She can’t get treatments due to her age, and she explains our campaign for equal access to treatments for SMA adults in Ireland. 

Roche and the HSE are currently in negotiations regarding access to the treatment Risdiplam (Evrysdi®) for adults living in the Republic of Ireland – making this a critically important moment for the SMA community. 

Thank you to everyone who has supported our campaign so far. Your support is helping keep this issue in the spotlight. 

Please like, share, and help us continue raising awareness at this important time. Encourage your friends, family, and network to join in! 

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Take part in #MakeWayDay26 on Friday 29 May 2026

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Do you hear the people sing? Well… you could be - at Les Misérables in the 3Arena on 6th June.