National Conference 2026

FAQs

Booking your place

Who is the conference open to?
The conference features three programmes: one for adults, one for young people aged 8 to 17 yrs, and one for children aged 5 to 7 years.

The adults’ programme is open to individuals living with muscular dystrophy and related neuromuscular conditions, their family members, friends, and other stakeholders, such as healthcare professionals and researchers.

The youth programme (8-17 yrs) is designed for young individuals aged 8 to 17 years who are living with muscular dystrophy and related neuromuscular conditions, as well as their siblings.

The children’s programme (5-7 yrs) is designed for children aged 5 to 7 years who are living with muscular dystrophy and related neuromuscular conditions, as well as their siblings.

You are welcome to bring children under the age of five to the conference, provided they remain under your supervision at all times. Please note that we do not offer childcare services or a programme for children under five, so you will be responsible for their care throughout the event. Please also note, the content of some of the workshops may not be appropriate for this age group – this is up to the discretion of parents.

If I bring my own Personal Assistant, do I need to book a ticket for them on Eventbrite?
No, you don't need to book a separate ticket for them. When booking your ticket on Eventbrite, you will be asked to indicate if you are bringing a PA and to let us know any dietary requirements they may have and photo consent.

Is there a booking fee?
To help us plan more accurately and make the best use of conference resources, we are introducing a refundable conference booking fee for this year’s event. The fee is €10 per adult or €20 per family and will be fully refunded following the conference to those who attend.

For family bookings, the refund will be issued where all attendees included in the family booking attend the event.

Refunds will also be provided within 10 working days where a booking is cancelled by13 November 2026.

Please note that the booking platform applies a separate non-refundable processing fee of approximately €2.50 per booking at checkout. This processing fee is charged by the booking platform and is not refundable, even where the conference booking fee is refunded.

Why is there a refundable booking fee?
Last year, we were delighted that the conference was fully booked in advance. However, on the day, a significant number of registered attendees were unable to attend without cancelling their place. This resulted in substantial costs for MDI, as well as unnecessary food waste.

Conference registration includes a light lunch and refreshments, with catering costs amounting to approximately €49 per person. These are funds that could otherwise have been directed towards the vital services, supports and advocacy work that MDI provides. A refundable booking fee helps us plan more accurately and make the best use of MDI’s resources in delivering services to our members.

How do I book my place?
Choose from two ticket types:
1. Individual Adult Ticket
2. Family Ticket

1. Individual Adult Ticket (€10 refundable)
For adults attending WITHOUT A FAMILY BOOKING. Select one ticket for each adult booking.

No need to book a ticket for your PA. We'll collect their details in your booking form. 

A refundable fee of €10 per adult booking applies and will be refunded after the conference to those who attend. Refunds will also be provided within 10 working days to those who cancel their booking by 13 November 2026. A small non-refundable booking fee charged by the booking platform will be added at checkout.

2. Family Ticket (€20 refundable fee)
You, as primary adult, select one Family Ticket. Then, BEFORE SELECTING THE CHECK OUT BUTTON, SCROLL DOWN to select a free place for each additional family member attending from the options listed below and complete ALL their attendee details:

Another Adult Attendee (€0) No need to book a place for your PA.

Youth Programme (€0)

Children's Programme (€0).
A refundable fee of €20 per family applies and will be refunded after the conference to those who attend. Refunds will also be provided within 10 working days to those who cancel their booking by 13 November 2026. For family bookings, the refund will be issued where all attendees included in the family booking attend the event. A small non-refundable booking fee charged by the booking platform will be added at checkout.

How do cancel my booking[?
Open your booking confirmation email from Eventbrite
Click View and Manage Your Order.
Click Request a Refund and follow the prompts.
Click on Select All
Submit your refund request before Friday 13 November 2026.

Eventbrite will issue your refund within 10 working days.

Getting there

How do I get there?
You will find travel directions by car, train and bus to the Cusack Stand Car Park here.Or if you’re coming by car, enter the Eircode for the Daybreak shop D03 CE05 on Clonliffe Road into Google Maps, it will bring you to the entrance of St Joseph’s Avenue, the direct access road to the Cusack Stand. Follow signage for the Cusack Stand car park from this point. The Daybreak shop is the landmark used by the stadium to guide visitors to the Cusack Stand car park.  Here’s the Google Maps link for the Daybreak shop https://maps.app.goo.gl/p6RwJgeqscQfUTbT7

Where can I park?
The Cusack Car Park is available from St Joseph’s Avenue, Clonliffe Road, Drumcondra, Dublin 3. It’s outdoor and very close to the venue entrance.

Can I get dropped off at the main door?
Yes – if you wish, you can get dropped at the main door. Please tell us in advance if you wish to do so by emailing respite@mdi.ie or phoning MDI’s Helpline on +353 01 6236414 by 16 November.

Will there be anyone at the main entrance to direct me to registration?
Yes. Members of the MDI staff team will be there to direct you.

Where and when is registration?
Registration for everyone will take place in the Cusack Suite, Level 5 at 10am.

How do I get to the youth / children’s programmes?
First, you will need to register at Level 5, Cusack Suite, with any adults attending. Registration opens at 10am. Then make your way to Level 6 by taking a lift. Members of the MDI Team will be there to direct you. Please make sure to leave plenty time for registration and getting to Level 6 for the 11am start.

Children and young people

Is childcare provided at the conference?
No. Please note that we do not offer childcare services or a programme for children under five. However, you are welcome to bring children under the age of five to the conference, provided they remain under your supervision at all times and you are responsible for their care throughout the event. Please also note, the content of some of the workshops may not be appropriate for this age group – this is up to the discretion of parents.

How do I get to the youth / children’s programmes?
First, you will need to register at Level 5, Cusack Suite, with any adults attending. Registration opens at 10am. Then make your way to Level 6 by taking a lift. Members of the MDI Team will be there to direct you. Please make sure to leave plenty time for registration and getting to Level 6 for the 11am start.

Who will be responsible for personal and medical care of participants on the youth / children’s programmes?
MDI staff will be on hand to assist young members during the workshops. However, personal and medical care will be the responsibility of parents/guardians on the day. Parents/guardians will be contacted during the day by the MDI Youth Team, if and when required for such care.

What happens at lunchtime for participants on the youth / children’s programmes?
Young people will join their parents / guardians for lunch with all of the conference participants at Level 5.

Will photos / video recording of the youth / children’s programmes be shared with the public?
We may share photos/videos if you have given permission when booking on Eventbrite. We won’t share photos/videos if you haven’t given permission.

Toilets and personal care

Are there accessible toilets?
Yes. Accessible toilets are located on Levels 5 and 6 where the conference will take place. Members of the MDI Team will be available to guide you to them. 

Is there a Changing Places Toilet?
Yes. There is a Changing Places Toilet at Level 4 at Section 409. This can be accessed easily from the venue entrance and from Levels 6 and 5 by lift. Members of the MDI Team will be available to guide you there and back! Watch our video here.

What is a Changing Places Toilet?
A Changing Places Toilet is an accessible sanitary facility with a toilet, hoist, washbasin, adult-sized changing bench and optional shower with adequate space for use by persons with a range of disabilities who may require assistance.

Slings
Here is a photo of the ceiling hoist in the Changing Place.

Will hoists be available?
There will be hoists in appointed toilets on Levels 5 and 6.  While some slings will be available, we also kindly ask that you bring your own looped-type sling if possible..

Who will be responsible for personal and medical care of participants at the youth/children’s programmes?
MDI staff will be on hand to assist young members during the workshops. However, personal and medical care will be the responsibility of parents/guardians on the day. Parents/guardians will be contacted during the day by the MDI Youth Team if and when required for such care.

Additional disability access requirements

Please let us know of any additional disability access requirements when booking your place on Eventbrite.

Will there be any supports available for participants with a hearing impairment?
A hearing aid system can be made be available for you to collect at registration. They are worn on a lanyard that will be provided and come with a single earphone. Just let us know if you’ll need one when you’re booking your place on Eventbrite.

Lunch and refreshments

What times are lunch and refreshments?

  • Refreshments will be served on arrival at 10:00am.

  • Light lunch will be served on Level 5 at 12:30.

  • Refreshments will be served again from 14:50 to 15:10

What are the lunch arrangements?
Light lunch  will be served at 12:30. Table service will be provided.

Will adults and young people eat lunch together?
Yes, adults and young people will eat together. Young people will join their parents / guardians for lunch.

What lunch will be provided for children and young people?
Lunch for children and young people will be crispy chicken fillet bites and chips, followed by chef’s choice dessert.  If your child would prefer an alternative meal, you are welcome to bring a packed lunch from home.

If your child has any allergies or dietary requirements, please indicate these in the registration form.

What lunch will be provided for adults?

Lunch for adults will be a selection of gourmet sandwiches, roasted winter vegetable soup and Croke Park signature sausage roll, followed by chef’s choice dessert.

If you have any allergies or dietary requirements, please indicate these in the registration form.

Additional queries

Who can I ask a question that you haven't answered?
If you have any additional queries, please contact Gillian Reid on respite@mdi.ie or phone our Information Line on +353 01 6236414.

A woman and a man in a wheelchair having a conversation during a conference. The woman has long blonde hair, a black blazer, a blue scarf, and is holding a yellow document. The man has dark hair, is wearing a patterned sweater, and a name tag that says 'Dr. Jeff Preston'. They are sitting in front of a screen displaying the text 'CONFERENCE'.