Unfinished Business: Equal Access to Treatments for SMA Adults!
We continue to shine a light on the unfair exclusion of approximately 20 adults living in Ireland from accessing approved, lifesaving SMA treatments. Despite overwhelming public support and backing from numerous TDs, senators and healthcare professionals, these individuals are still being denied treatment simply because they were over 18 at the time of the original HSE approval.
Campaign update: Equal access to treatments for SMA adults
There is still work to be done, and we are asking for further support in keeping the pressure on your representatives until every adult living with SMA has equal access to these life-changing treatments. Please visit the link in article and ask your TD for their continued support in overturning this restriction.
Help us keep the pressure on for access to treatments for SMA adults!
Can you please help us keep the pressure on until adults with spinal muscular atrophy (SMA) get equal access to the treatments they need? We urge you to contact your local TDs and senators, expressing the need for their continued support until this injustice is rectified. Time matters. Every week that passes without action is a week in which individuals continue to experience serious progression of this condition.