Please show your support for our Campaign for Equal Access to Treatments for Adults Living with Spinal Muscular Atrophy (SMA) at this crucial time! 

Listen to Aoife’s story. She can’t get treatment due to her age. For every day that goes by without access to treatment, she experiences deterioration and a loss of muscle function.  

https://www.youtube.com/shorts/oPmPPVWz9QU

Roche and the HSE are currently in negotiations regarding access to the treatment Risdiplam (Evrysdi®) for adults living in the Republic of Ireland – making this a critically important moment for the SMA community. 

Thank you to everyone who has supported our campaign so far. Your support is helping keep this issue in the spotlight. 

Please like, share, and help us continue raising awareness at this important time. Encourage your friends, family, and network to join in! 

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MDI member and vice-chairperson Patrick Flanagan, spoke to Virgin Media News about the Cost of Disability,