David Kennedy describes the impact of early support from MDI’s Clinic Liaison service following his diagnosis.

I still remember very clearly the day I was first diagnosed with FSH muscular dystrophy by the neurologist in Beaumont Hospital. As I left the consultation, I genuinely felt that I was on my own and unsure how to navigate what lay ahead. Just as I was about to leave the hospital, Dr. Lefter called me back to introduce me to Sinead as the Clinic Liaison Officer with Muscular Dystrophy Ireland. After spending time with her that morning, I left Beaumont in a completely different frame of mind – reassured, supported, and confident that I was not alone. 

That support continued at a later appointment when I was diagnosed with drop foot and advised not to drive a manual car. Meeting with her again, she clearly and patiently explained the process, encouraged me to link in with MDI, and guided me through the supports available. With MDI’s help, I received fantastic support towards the cost of adapting my car, which had a very real and positive impact on my independence and quality of life. 

I would very much like to acknowledge the importance of the Clinic Liaison service that MDI provides. It bridges a critical gap at moments when people are most vulnerable and makes a tangible difference, both practically and emotionally.