Meet the Condition Behind Walk4Ollie: Bethlem Myopathy Explained

With Walk4Ollie coming up, we wanted to share the impact of Bethlem Myopathy, a form of Muscular Dystrophy. You can support us in helping members like Ollie by donating, sharing, and joining us on the 26th of September for this year's Walk4Ollie! Contact foundation@mdi.ie for more information.

What is Bethlem Myopathy?

Bethlem Myopathy is a rare genetic muscle condition that affects strength, movement, and flexibility. It's caused by changes in the collagen that helps support muscles and connective tissue.

How does it impact daily life?

Some people may experience:

• Muscle weakness and fatigue

• Tight joints and reduced flexibility

• Difficulty walking, limbing stairs, or keeping up with friends

• The need for mobility aids or ongoing physiotherapy

How can you support MDI & Walk4Ollie?

By supporting Walk4Ollie, you're helping to raise awareness and support our work to ensure people living with neuromuscular conditions can access the support, opportunities, and inclusion they deserve.

Here's how you can help:

• Join the walk

• Donate if you can

• Share Ollie's story with friends and family

• Help spread awareness of Bethlem Myopathy