Spotlight on members of our community living with neuromuscular conditions: Donal McTernan
International Myotonic Dystrophy Awareness Day is on 15 September. Special thanks to Donal for sharing his story and raising awareness about myotonic dystrophy.
Clinical Trial Update: Early Results Published for DM1 Investigational Therapy
Pharmaceutical company PepGen has published preliminary results from the first phase of its FREEDOM2-DM1 clinical trial, which is investigating a potential new therapy for people living with myotonic dystrophy type 1 (DM1).
MDUK are hosting two free virtual information seminars in January.
Each webinar will focus on a specific topic, such as helping you understand more about your condition, sharing the latest information about treatments, or providing updates on research. As well as people living with a muscle wasting or weakening condition, they are also open to friends, family members and carers.
Today Is International Myotonic Dystrophy Awareness Day!
The colour green has been chosen to represent International Myotonic Dystrophy Awareness Day which takes place on 15 September and many buildings throughout the world will be lit up green on the day! As MDI’s News Update focused on Myotonic dystrophy last January, we are happy to provide an update on research developments since then.
Round Up On Research Developments By Condition
Neuromuscular conditions can be difficult to diagnose and manage, so research is vital for families and for quality of life. In this issue, we include a round-up of some research developments that have taken place in recent months