🧠 HSE Project: Improving Care for People with a Neurological Condition
Research, News Niall Dennehy Research, News Niall Dennehy

🧠 HSE Project: Improving Care for People with a Neurological Condition

The HSE is working on a new plan (called an integrated approach) to help improve care for people with a neurological condition. A neurological condition is when the brain, spinal cord, or nerves aren’t working properly. Some examples include Parkinson’s disease, epilepsy, head trauma, multiple sclerosis, motor neurone disease, headache (and migraine). We want to hear from people who use these services—patient and service user partners — so we can help improve care together.

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Medical Independent: New molecular technology required for SCID and SMA screening – HSE
Research, News Niall Dennehy Research, News Niall Dennehy

Medical Independent: New molecular technology required for SCID and SMA screening – HSE

The introduction of new molecular technology to the National Newborn Bloodspot Screening Laboratory (NNBSL) is required to implement screening for severe combined immunodeficiency (SCID) and spinal muscular atrophy (SMA), according to the HSE. The Executive indicated this was an additional requirement to the “substantial” body of work required to introduce any new condition to the programme.

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HSE Patient Feedback For National Genetics And Genomics Office
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HSE Patient Feedback For National Genetics And Genomics Office

National Genetics & Genomics Office are aiming to better understand what people who are referred to genetic and genomic services, and their families, need to know to help them better navigate services. The knowledge gained will be used to work towards an improved patient experience of using genetic and genomic services. More information the advert attached. Expressions of interest close on 23rd February 2024.

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