🧠HSE Project: Improving Care for People with a Neurological Condition
🔍 What is this project about?
The HSE working on a new plan (called an integrated approach) to help improve care for people with a neurological condition.
A neurological condition is when the brain, spinal cord, or nerves aren’t working properly. Some examples include Parkinson’s disease, epilepsy, head trauma, multiple sclerosis, motor neurone disease, headache (and migraine).
We want to hear from people who use these services—patient and service user partners — so we can help improve care together.
🙋‍♀️🙋‍♂️ Who can take part?
You can apply if you are:
âś… A person living with a neurological condition
âś… A carer or family members of someone living with a neurological condition
🧑‍🤝‍🧑 Who else will be involved?
This project brings together people with neurological conditions or their carers, healthcare professionals and researchers.
đź’¬ What will I be doing?
As part of this group, you’ll:
Help shape ideas for how services could be improved
Attend in-person workshops in Dublin city centre (each about 3 hours long). You can ask to attend remotely if you prefer.
Join online meetings using MS Teams.
đź“š Time outside meetings?
There may be a little reading between meetings. We’ll check with you about what’s manageable.
đź•’ How long is the project?
The project is estimated to run from May 2025 to June 2026.
🤝 Will I get help?
Yes, we’ll make sure you feel confident and included.
We will:
Give a briefing before you start
Support any needs you have
Answer your questions
Send regular updates by email
đź’¶ Will I be paid?
We can’t pay for your time, but we’ll cover travel and other costs. You can read more here:👉 Reimbursement policy
🌟 What are the benefits of taking part?
By joining this project, you will have the opportunity to:
Directly influence how care is designed and delivered for people with neurological conditions.
Collaborate with healthcare professionals, researchers, and other service users in a respectful and supportive environment.
Gain experience in healthcare co-design.
🎯 What is the goal?
By the end of this project, we hope to have:
A new plan (called an integrated approach) to help improve care for people living with a neurological condition.
The deadline to submit an expression of interest to patient.partnership@hse.ie is the 30th April.
The consultation relates to improving care for people with all neurological conditions, including muscular dystrophy and related neuromuscular conditions.