September 25th is World Ataxia Awareness Day
International Ataxia Awareness Day (IAAD) is on September 25th of each year. It is a coordinated effort from individuals and Ataxia organizations around the world to help shed light on this rare disease. NAF is committed to leading the way on this outreach effort – but we need your help! We encourage individuals and disease organizations to join us by planning events and/or awareness campaigns for IAAD.
Today is World Myositis Day!
Myositis is an inflammatory autoimmune condition that can cause muscles to become weak and painful. Idiopathic inflammatory myopathies are an umbrella term for the different types of myositis. These autoimmune conditions mean the body attacks its own muscles, connective tissue, blood vessels, skin, lungs, and other organs. This often occurs together with other symptoms, such as muscle swelling, pain, fatigue, difficulty moving limbs or lifting arms, increased falls, trouble swallowing, and others.
[Watch] Raise your voice for Duchenne: the documentary for World Duchenne Awareness Day 2024
September 7 is World Duchenne Awareness Day. On this day we raise awareness for Duchenne and Becker muscular dystrophy around the globe. As every year, World Duchenne Awareness Day have a special theme that deserves more attention. This year saw the official launch of the documentary Raise Your Voice for Duchenne, directed by Nicoletta Madia and produced by Arim Communication!
United Nations Officially Designates 7 September As World Duchenne Awareness Day
The adoption of the resolution ‘World Duchenne Awareness Day’ is the UN’s first formal acknowledgment of a day dedicated to a rare condition.