Have Your Say: Survey on Wheelchair Accessibility Challenges
I am a secondary school student, doing a science project on wheelchair accessibility. I want to highlight all the problems and challenges facing wheelchair users because of problems with accessibility, and work on providing solutions for this.
MDI wants to hear from you!
MDI’s next organisational Strategic Plan will run from 2026-2028 and to ensure our services are as responsive, inclusive and transformative as possible we’d love to hear from current MDI members with a neuromuscular condition and their families.
Barriers to Gaming: Accessibility, Controller Design and Physical Disabilities.
Gamers with limited mobility or motor function find it challenging to use traditional controllers. Complex button combinations and rapid reflexes can create barriers to success, leaving these players feeling excluded from mainstream games. Help Andre Vysotskyi with his thesis - 'Barriers to Gaming' by completing this survey. Please note - this survey is only for people who are 18 years of age and over.
Study: The psychosocial needs of adults living with neuromuscular conditions’, UCD School of Psychology
This research is being conducted to identify and better understand these psychological and social challenges and to raise awareness of these issues and advocate for services to address unmet needs. To participate individuals over 18 years of age need to complete a survey which is anticipated to take between 15-20 minutes.
Study: ‘The Lived Experience of Health-related Quality of Life for Adults with Muscular Dystrophy in Ireland’ - Health Psychology, University of Galway
The main aim of this research is to explore the psychosocial needs including quality of life, coping, social support, depressive symptoms, and anxiety symptoms of individuals living with neuromuscular conditions. A secondary aim is to explore the impact of stigma in individuals living with one of these conditions. To participate individuals over 18 years of age need to complete a survey which is anticipated to take between 15-20 minutes.
European Reference Network – Patient reported outcome measure.
The Patient Advisory Board of the European Reference Network on Neuromuscular Diseases (ERN EURO-NMD) have prepared the following survey for adults (aged 18 and over) living with a neuromuscular condition. The purpose of this survey is to identify the types and severity of symptoms individuals experience
State of Caring 2024 – Family Carers Ireland
On behalf of Family Carers Ireland, you are invited to participate in their State of Caring 2024 survey. This biennial survey is a vital initiative aimed at comprehensively understanding the lives and experiences of family carers across Ireland who are currently providing care. Previous reports have played a crucial role in shedding light on the impact of caregiving.