European Reference Network – Patient reported outcome measure.

The Patient Advisory Board of the European Reference Network on Neuromuscular Diseases (ERN EURO-NMD) have prepared the following survey for adults (aged 18 and over) living with a neuromuscular condition. The purpose of this survey is to identify the types and severity of symptoms individuals experience.  All information gathered is anonymous and cannot be traced back to you. If you wish to take part, you can access the survey via this link: https://www.surveymonkey.com/r/RP72XNM

If you want to know more about the ERN-EURO-NMD you can view information here https://ern-euro-nmd.eu/about/