We're all packed up and ready to go for the start of Walk4Ollie 2025!
Paddy Hickey called in to MDI today and the team were delighted to wave him off as he embarks on the third edition of Walk4Ollie on Monday and the road to €100,000 for the Ollie Hickey Fund! We will be following his progress all next week, so watch this space!
Invitation to participate in a research study on Community-Based Healthcare for Individuals with Neuro-Physical Disabilities
Have your say on what matters most when accessing and using community-based healthcare services. A PhD Researcher in Health Economics at University College Cork, is exploring how community-based healthcare services can better support people living with neuro-physical disabilities. The results will give a clearer picture of how to design community-based care that truly meets the needs of people with neuromuscular and other neuro-physical conditions. This evidence will help guide public policy, reduce inequalities, and improve social wellbeing and sustainability.
International Myotonic Dystrophy Awareness Day, 15 September 2025
nternational Myotonic Dystrophy Awareness Day aims to garner the attention of the wider general public, policy makers, regulators, biopharmaceutical representatives, researchers, health care professionals, and anyone with an interest in changing the future of myotonic dystrophy.
MDI Delivers Neuromuscular Awareness Talk at eBay Ahead of Walk4Ollie Fundraiser
An Awareness Talk on Neuromuscular Conditions was delivered today to eBay staff by MDI Head of Services Ashling Kennedy as part of MD Awareness Week and also ahead of our fantastic Walk4Ollie Fundraiser, which kicks off from Letterkenny on Monday 22nd September!
Applications now open for the 2026 Open Academy Schools
The Open Academy School on Medicines Research & Development and the Open Academy School on Scientific Innovation & Translational Research will take place in Barcelona from 25 to 28 May 2026. Applications are now open and will close on 17 October 2025.
Webinar: Supporting Primary School Students with Muscular Dystrophy and Related Neuromuscular Conditions
We're thrilled to continue our collaboration with Education Support Centres Ireland to host a WEBINAR FOR PRIMARY SCHOOL STAFF on 24 September! Attention parents of primary students with NMCs! We encourage you to share this valuable learning opportunity with your child’s school and let them know about it. Together, we can enhance their educational experience!
Webinar: Supporting Post-Primary School Students with Muscular Dystrophy and Related Neuromuscular Conditions
We're thrilled to continue our collaboration with Education Support Centres Ireland to host a WEBINAR FOR POST-PRIMARY SCHOOL STAFF on 1 October! Attention parents of post-primary students with NMCs! We encourage you to share this valuable learning opportunity with your child’s school and let them know about it. Together, we can enhance their educational experience!
Have Your Say: Survey on Wheelchair Accessibility Challenges
I am a secondary school student, doing a science project on wheelchair accessibility. I want to highlight all the problems and challenges facing wheelchair users because of problems with accessibility, and work on providing solutions for this.
The World Duchenne Awareness Day 2025 theme is “Family: the heart of care”
World Duchenne Awareness Day (WDAD) is 7 September, which highlights the role of family members for people living with Duchenne and Becker muscular dystrophy. Living with Duchenne muscular dystrophy (DMD) is a journey marked by both physical challenges and emotional resilience. At the centre of this journey is family.
September is Muscular Dystrophy Awareness Month!
September is Muscular Dystrophy Awareness Month which is made even more significant by being marked with awareness days for several specific conditions. MDI is looking forward to sharing information and engaging with members and the online community throughout the month. This September, go green in support of raising awareness of Muscular Dystrophy!
Online Information Webinar - Improving Access to Clinical Trials
As part of IPPOSI’s Patient Capacity Building Programme, IPPOSI is delighted to host an online information webinar in collaboration with ClinicalTrials.eu – a new European Union platform designed to make clinical trial information more accessible to the public.
Save the date for our FSHD COMMUNITY GATHERING
We are delighted to continue our series of condition-specific community gatherings by hosting our FSHD COMMUNITY GATHERING, 11:00 – 16:00, Saturday, 11 October 2025
MDI supports Neurological Alliance of Ireland’s Pre-Budget 2026 Submission
NAI published its Pre Budget Submission on June 24th, calling for investment in neuro-rehabilitation services.
MDI supports Disability Federation of Ireland’s Pre-Budget 2026 Submission
As one of its member organisations, MDI joins with Disability Federation of Ireland (DFI) calling for urgent action across six key areas in its Pre-Budget 2026 Submission:
August is Spinal Muscular Atrophy (SMA) Awareness Month: Educate, Support, Research
Spinal muscular atrophy (SMA) is a genetic condition that affects the motor neurons, causing progressive muscle weakness and wasting (atrophy). SMA is also called 5q SMA. This is because, in most cases, SMA is caused by a change in the SMN1 gene located on chromosome 5 (5q). 5q SMA has traditionally been classified into type 1, 2, 3, and 4, based on when symptoms appear and how severe they are. Type 0 is a rare and very severe form with symptoms developing before birth. SMA can be diagnosed through genetic testing in pre-symptomatic stages.
Funeral arrangements for Jimmy Murray
Reposing at Cunningham’s Funeral Home, Clonsilla on Sunday evening (August 24th) between 4 pm and 6 pm. Removal on Monday morning (August 25th) to The Church of Our Lady Mother of the Church, Castleknock arriving for Funeral Mass at 11 am followed by cremation in Glasnevin Crematorium.
It is with deepest regret that we have to share the news of the passing of our wonderful friend and colleague Jimmy Murray.
Jimmy was a very proud member of our MDI family, starting as the chairman many years ago and then a valued member of the staff team for an incredible 25+ years. Jimmy was a true representation of our organisation, his willingness to go above and beyond for, not only our members, but for every member of the staff team that knew him, was just one of his passions, he will be irreplaceable.
The HSE has launched an updated Health Passport App
This App includes sections on Critical Information, Personal Information, Communication, Decision Making, Medical History, Food and Drink, and Personal Care. There is an option to email the passport, if required, to a health or social care professional prior to an appointment or admission to the hospital.