The World Duchenne Awareness Day 2025 theme is “Family: the heart of care”

Family: The Heart of Care
We wish to share this year’s theme for World Duchenne Awareness Day (WDAD), 7 September, which highlights the role of family members for people living with Duchenne and Becker muscular dystrophy. Living with Duchenne muscular dystrophy (DMD) is a journey marked by both physical challenges and emotional resilience. At the centre of this journey is family. The love, support, and daily involvement of family members play a vital role − not just in caregiving, but in shaping the quality of life and emotional well-being of people living with DMD. For a person with Duchenne, parents are often their fiercest advocates and most devoted caregivers; siblings are companions and lifelong friends; grandparents, uncles and aunts are a steadying presence. Family can also be friends and the community where people live in an inclusive way. Find out more here