MDI is a partner in Rare Diseases Irelands campaign ‘Get Rare Aware’.
This campaign is calling on the Government to urgently double the number of conditions screened for in Ireland’s newborn bloodspot screening (NBS) programme also known as the ‘heel prick test’ to the European average of 18.
Call For Participants: Take part in Duchenne Muscular Dystrophy (DMD) Study
Calling adults with Duchenne Muscular Dystrophy to share their experiences of moving into adulthood.