Call of interest: Global DMD Adult Group
In the coming months, the group hopes to expand these discussions, focusing on issues like navigating life’s milestones differently, especially as adults with DMD and BMD face unique challenges in adulthood. In collaboration with the World Duchenne Organization, the group intends to explore themes such as independence, relationships, and navigating life transitions.
Are you a parent or caregiver to a teenager/young adult with Duchenne Muscular Dystrophy?
We are doing research to assist us in creating resources for teenagers with Duchenne Muscular Dystrophy to help them prepare for moving into adulthood. What's involved? An individual interview online or in person with Siobhán O'Shea, postgraduate researcher, Discipline of Occupational Therapy, Trinity College Dublin' if you choose to take part.
Calling adults with Duchenne Muscular Dystrophy to share their experiences of moving into adulthood
We are doing research to assist us in creating resources for teenagers with Duchenne Muscular Dystrophy to help them prepare for moving into adulthood. What's involved? An individual interview online or in person with Siobhán O'Shea, postgraduate researcher, Discipline of Occupational Therapy, Trinity College Dublin' if you choose to take part.