Are you a parent or caregiver to a teenager/young adult with Duchenne Muscular Dystrophy?
If you are a parent or caregiver to a teenager/young adult with Duchenne Muscular Dystrophy we would like to hear from you and have you share your concerns, expectations and hopes with us.
We are doing research to assist us in creating resources for teenagers with Duchenne Muscular Dystrophy to help them prepare for moving into adulthood. What's involved? An individual interview, online, with Siobhán O'Shea, postgraduate researcher, Discipline of Occupational Therapy, Trinity College Dublin if you choose to take part.
For more information email osheas7@tcd.ie
This research is being carried out by The Discipline of Occupational Therapy, Trinity College Dublin in collaboration with Muscular Dystrophy Ireland