Expression of Interest (EOI) - Patient Partners for the National Rare Disease Strategy Implementation Programme

The National Rare Disease Office (NRDO) is pleased to launch an Expression of Interest (EOI) process seeking Patient Partners to participate in implementation of the National Rare Disease Strategy 2025-2030.

Patient Partners will contribute to National Rare Disease Strategy Workstream Groups and the Patient Partnership Forum, working alongside patient advocacy organisations, clinicians, researchers, healthcare professionals, policymakers, and other stakeholders to help shape and inform implementation of the Strategy.

We welcome applications from:

• People living with a rare disease

• Family members of a person living with a rare disease

• Carers of a person living with a rare disease

Information for Applicants:🔗 Click here to view the Information for Applicants document

Apply Online:🔗 Click here to complete the Expression of Interest form

Closing Date:
5.00pm, Monday 28 September 2026

Please feel free to share this opportunity through your networks.

If you require the application in an alternative format or would like a paper copy, please contact NRDOadministration@mater.ie