Campaign for Friedreich's Ataxia Treatment Access Continues — Read the Latest

FARA Ireland's April 2026 Advocacy Bulletin details the latest steps being taken to secure reimbursement of SKYCLARYS for people living with Friedreich's Ataxia in Ireland. Download the full bulletin for an update on where things stand.

Download and read the PDF newslteer here: https://www.mdi.ie/s/Advocacy-Bulletin-April-2026.pdf

Previous
Previous

Exciting Announcement: Save the date MDI Conference 2026!

Next
Next

[Irish Times] ‘There is a treatment and she’s not getting it’: Calls for HSE to fund drug for rare disease