[Irish Times] ‘There is a treatment and she’s not getting it’: Calls for HSE to fund drug for rare disease

Emily Felix (28) and her family were ‘killed’ by the news that a drug to treat Friedreich’s ataxia may not be considered for reimbursement by the HSE.

Read tthe full article here: https://www.irishtimes.com/health/2026/03/31/calls-for-hse-to-reconsider-funding-drug-for-rare-disease-were-a-forgotten-minority/