SMA Ireland and Muscular Dystrophy Ireland together are delighted to invite you to our upcoming summer SMA Community Gathering to mark Spinal Muscular Atrophy (SMA) Awareness month. Join us on 20 August 2024 at the Mullingar Park Hotel for a day filled with connection, shared experiences, learning and fun.

We welcome families, young people and adults living with any of the congenital muscular dystrophies including Collagen VI-related dystrophies, LAMA2-related dystrophies, LMNA-related congenital muscular dystrophy, alpha-dystroglycanopathies and SELENON-related dystrophy. Opportunity to get together as a community and learn together. National youth club for under 18’s with all neuromuscular conditions and siblings will take place in person at the same time as the community gathering event. Time for questions and discussion.

An opportunity for people living with Duchenne muscular dystrophy and their families to meet as a community and learn together.

An opportunity for people living with myotonic dystrpohy and their families to meet as a community and learn together.