Be one of the first 15 households to book your spot at MDI’s Conference and receive a FREE Amazon Echo Show smart display with Alexa for attending!
Be part an unforgettable experience as we come together as a community, fostering meaningful connections, sharing knowledge, and supporting one another. Our conference is a warm and inclusive space for adults and young people living with muscular dystrophy and related neuromuscular conditions, as well as their families, healthcare professionals, and other stakeholders. We look forward to warmly welcoming you and sharing an enriching experience together.
Budget a setback for disabled people, says Federation
The Disability Federation of Ireland has said that while it welcomes the €619m increase in funding for disability services, the Budget overall represents a devastating setback for disabled people unable to work.
Book Now: MDI FSHD Community Gathering – Online | Saturday 11 October
We are delighted to invite you to our FSHD community gathering on Saturday 11 October. Please note this event will now take place online only. It will be opportunity for people living with FSHD and their families to connect as a community and learn together. We have lined up an exciting programme of speakers and topics that we hope you will find informative and empowering.
Take part in Make Way Day on Friday 26 September. The revolution starts with you!
Take part in Make Way Day on Friday 26 September. The revolution starts with you!
OPMD Awareness Day Webinar, 23 September at 5pm – Register Now!
As part of Muscular Dystrophy Awareness month, we wish to let you know that 23 September is OPMD Awareness Day, when the OPMD Community comes together to raise awareness of Oculopharyngeal Muscular Dystrophy and to celebrate all members of the OPMD community.
World Myositis Day takes place on 21 September
Myositis is an inflammatory autoimmune condition that can cause muscles to become weak and painful. Idiopathic inflammatory myopathies are an umbrella term for the different types of myositis. These autoimmune conditions mean the body attacks its own muscles, connective tissue, blood vessels, skin, lungs, and other organs. This often occurs together with other symptoms, such as muscle swelling, pain, fatigue, difficulty moving limbs or lifting arms, increased falls, trouble swallowing, and others.
We're all packed up and ready to go for the start of Walk4Ollie 2025!
Paddy Hickey called in to MDI today and the team were delighted to wave him off as he embarks on the third edition of Walk4Ollie on Monday and the road to €100,000 for the Ollie Hickey Fund! We will be following his progress all next week, so watch this space!
Invitation to participate in a research study on Community-Based Healthcare for Individuals with Neuro-Physical Disabilities
Have your say on what matters most when accessing and using community-based healthcare services. A PhD Researcher in Health Economics at University College Cork, is exploring how community-based healthcare services can better support people living with neuro-physical disabilities. The results will give a clearer picture of how to design community-based care that truly meets the needs of people with neuromuscular and other neuro-physical conditions. This evidence will help guide public policy, reduce inequalities, and improve social wellbeing and sustainability.
International Myotonic Dystrophy Awareness Day, 15 September 2025
nternational Myotonic Dystrophy Awareness Day aims to garner the attention of the wider general public, policy makers, regulators, biopharmaceutical representatives, researchers, health care professionals, and anyone with an interest in changing the future of myotonic dystrophy.
MDI Delivers Neuromuscular Awareness Talk at eBay Ahead of Walk4Ollie Fundraiser
An Awareness Talk on Neuromuscular Conditions was delivered today to eBay staff by MDI Head of Services Ashling Kennedy as part of MD Awareness Week and also ahead of our fantastic Walk4Ollie Fundraiser, which kicks off from Letterkenny on Monday 22nd September!
Applications now open for the 2026 Open Academy Schools
The Open Academy School on Medicines Research & Development and the Open Academy School on Scientific Innovation & Translational Research will take place in Barcelona from 25 to 28 May 2026. Applications are now open and will close on 17 October 2025.
Webinar: Supporting Primary School Students with Muscular Dystrophy and Related Neuromuscular Conditions
We're thrilled to continue our collaboration with Education Support Centres Ireland to host a WEBINAR FOR PRIMARY SCHOOL STAFF on 24 September! Attention parents of primary students with NMCs! We encourage you to share this valuable learning opportunity with your child’s school and let them know about it. Together, we can enhance their educational experience!
Webinar: Supporting Post-Primary School Students with Muscular Dystrophy and Related Neuromuscular Conditions
We're thrilled to continue our collaboration with Education Support Centres Ireland to host a WEBINAR FOR POST-PRIMARY SCHOOL STAFF on 1 October! Attention parents of post-primary students with NMCs! We encourage you to share this valuable learning opportunity with your child’s school and let them know about it. Together, we can enhance their educational experience!
Have Your Say: Survey on Wheelchair Accessibility Challenges
I am a secondary school student, doing a science project on wheelchair accessibility. I want to highlight all the problems and challenges facing wheelchair users because of problems with accessibility, and work on providing solutions for this.
The World Duchenne Awareness Day 2025 theme is “Family: the heart of care”
World Duchenne Awareness Day (WDAD) is 7 September, which highlights the role of family members for people living with Duchenne and Becker muscular dystrophy. Living with Duchenne muscular dystrophy (DMD) is a journey marked by both physical challenges and emotional resilience. At the centre of this journey is family.
September is Muscular Dystrophy Awareness Month!
September is Muscular Dystrophy Awareness Month which is made even more significant by being marked with awareness days for several specific conditions. MDI is looking forward to sharing information and engaging with members and the online community throughout the month. This September, go green in support of raising awareness of Muscular Dystrophy!
Online Information Webinar - Improving Access to Clinical Trials
As part of IPPOSI’s Patient Capacity Building Programme, IPPOSI is delighted to host an online information webinar in collaboration with ClinicalTrials.eu – a new European Union platform designed to make clinical trial information more accessible to the public.
Save the date for our FSHD COMMUNITY GATHERING
We are delighted to continue our series of condition-specific community gatherings by hosting our FSHD COMMUNITY GATHERING, 11:00 – 16:00, Saturday, 11 October 2025