[Watch] The MDI Charcot-Marie-Tooth Community Gathering

We are delighted to share a video of two presentations at our Charcot-Marie-Tooth Community Gathering which took place in October 2023. The community gathering was an opportunity for people living with CMT and their families to connect as a community and learn together. A big thank you to Rebekah Knight and Maureen Bradley for generously sharing their expertise and experiences! Rebekah tells us about the CMT Exercise Video Series that she developed and shares her guidance, wisdom and learning, followed by discussion. Maureen shares her learning and experiences on living well with CMT.

You can select the presentation you wish to watch by clicking on the chapters below or see the chapters by hovering the mouse over the red progress bar on the video.

00:00:00 Introduction

00:02:36 Introduction to CMT Exercise Video Series developed by Rebekah Knight, specialist physiotherapist, for the Charcot-Marie-Tooth Association, USA. Rebekah joined us online from South Wales to tell us about the video series and share her guidance, wisdom and learning, followed by discussion. And you can watch the actual CMT exercise video series here.

01:05:47 Living well with CMT with Maureen Bradley, MDI member and retired physiotherapist, followed by discussion. Maureen Bradley is a member of MDI and retired physiotherapist. Maureen shares her learning and experiences on living well with CMT.

More about Rebekah Knight

Rebekah is a specialist physiotherapist with a passion for making exercise more inclusive and accessible. She was diagnosed with CMT1A, the most common form of CMT type 1, in 2011. She created the CMT Exercise Video Series for the Charcot-Marie-Tooth Association, USA and they have very kindly given us permission to share this resource with the CMT community in Ireland. The video focuses on functional improvement for those living with CMT. You can watch the actual CMT exercise video series here.