Watch: MDI Duchenne Muscular Dystrophy Community Gathering (Dublin, 18.11.2023)

We are happy to share our recording of our Duchenne muscular dystrophy community gathering which took place online and at MDI in Dublin on 18 November 2023. This is part of our series of condition specific community gatherings that aims to facilitate people living with specific conditions and their families to get together as a community and learn together.

Our sincere thanks to all the participants and to the following speakers:

·       Dr Laura Gallagher, Senior Clinical Psychologist in Neurodevelopment and Neurology at Children’s Hospital Ireland at Tallaght;

·       Conor McAuley, MDI member, disability advocate, public speaker and content creator;

·       Siobhán O’Shea, Occupational Therapist, Trinity College Dublin;

·       and Adith Thummalapalli, Vice-president of Parent Project Muscular Dystrophy (USA) Adult Advisory Committee.

Kindly supported by an independent grant from Roche. Roche have had no editorial influence over the content.

You can select the presentation you wish to watch by clicking on the chapters below or see the chapters by hovering the mouse over the red progress bar on the video:

00:00:00             Introduction

00:01:17            Transition to Secondary School: promoting independence and planning for success, Dr Laura Gallagher, Senior Clinical Psychologist in Neurodevelopment an Neurology, Children’s Health Ireland at Tallaght, Dublin. 

00:49:21             Conor’s story – how has he gotten to where he is today, Conor McAuley, MDI member, disability advocate, public speaker and content creator.

01:23:13             Supporting transitions to adulthood – occupational therapy research project, Siobhán O’Shea, Occupational Therapist, Trinity College Dublin.

01:51:08             Making international connections – Adith Thummalapalli, Vice-president of Parent Project Muscular Dystrophy (USA) Adult Advisory Committee.