New Resource Available: Becker Muscular Dystrophy Guide for Families Now in English!
This guide offers an accessible yet comprehensive overview of BMD, providing essential information on the condition’s many aspects. Available in digital format, it’s a valuable resource for patients and families seeking clarity and guidance.
Brain Involvement in Dystrophinopathies (BIND) Project
The BIND project is the first large-scale effort to better understand brain involvement in Duchenne and Becker Muscular Dystrophy (DMD and BMD). Funded by the EU, it brings together 19 partners from Europe and Japan. While muscle weakness has been the primary focus in recent decades, brain involvement has received less attention.
Spotlight on members of our community living with neuromuscular conditions: Annette Marie Murphy
As part of our members’ stories series, Annette Marie Murphy is delighted to share her story about her career.