MDI at the Rare Disease Research Conference 2026

MDI was delighted to attend the Rare Disease Research Conference 2026 at University College Dublin, hosted by the Rare Disease Clinical Trial Network.

The day brought together researchers, clinicians, patient advocates and other stakeholders to share developments in rare disease research, from innovative treatments and clinical trials to policy and the importance of patient involvement.

We were delighted to see RCSI PhD researcher Rucha Benare showcase her poster on developing innovative muscle-on-chip technology for Duchenne muscular dystrophy. MDI is proud to support Rucha's research through Research Ireland's Enterprise Partnership Scheme.

It was also great to see research posters highlighting work across other neuromuscular conditions, reflecting the breadth of ongoing research and the efforts being made to improve outcomes for people living with these conditions.

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Reforming the Disability Act 2005: A Once-in-a-Generation Opportunity to Advance Disability Rights