Children’s and Young People’s Research Advisory Group

The All-Ireland Rare Disease Interdisciplinary Research Network (RAiN) brings together a broad range of interdisciplinary professionals and patient representatives with an interest in research. As part of their efforts, they have established the Children’s Research Advisory Group (CRAG), a platform for children and young people with rare diseases to have a voice in guiding research. CRAG aims to ensure that research is relevant to the needs of young people by actively seeking their advice on what researchers do and how they approach their work.

They are interested to hear from young people with a muscular dystrophy or related neuromuscular conditions. See details in the poster below or visit their website for more information RAiN CRAG — Rare Disease All-Ireland Interdisciplinary Research Network