'Together we are strong': April 15 is International Pompe Day.
Run, Walk or Roll for Pompe is a fun event with a purpose. Every step you take helps muscles move and creates awareness of this rare disorder.Your efforts will help fund the IPA Erasmus Survey. This survey collects information directly from patients and has contributed to more publications than any other survey or registry.
Spotlight on Pompe disease
As International Pompe Day takes place every year in April, we want to raise awareness about this rare condition. We are unaware of anyone who is living with the condition in Ireland and so we are simply sharing information about the condition.