MDI are delighted to share the presentations and speakers from the recent FSHD Connect Europe
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This event created a unique opportunity for patients, families, and healthcare professionals to share knowledge, exchange experiences, connect and build lasting relationships. The atmosphere was one of solidarity, openness, and mutual respect, offering participants a space not only to learn but also to feel seen and heard.
The programme featured a broad range of topics reflecting the diverse needs and interests of the FSHD community, including living with FSHD, international care guidelines, family planning, genetics, empowering mobility, physical therapy, energy self-management and clinical trial readiness.