Liz Dickson on the experience of Barretstown with MDI and what it meant for their family

“We've had the pleasure of going to Barrettstown twice now with MDI and it's been such a great experience. For Tommy and Grace, going somewhere that's so child and family-centred and completely accessible is really joyful. The activities are so engaging and fun. They loved trying archery and horse riding, but I think kayaking was a real highlight for them.  

My core memory though, and what made it so special for us, was seeing Tommy and Grace make friends with other kids. Tommy loved meeting a few pals after dinner and doing wheelchair races on the balcony. It was fab.  

It's a really special place and the staff and volunteers really go above and beyond to make it unforgettable. We have really enjoyed making very special memories there.” 

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Can you take one quick action? Urgent access to Givinostat for boys with DMD