Help Drive Positive Change: Join MDI’s Advocacy Committee.

We’re inviting members of the MDI community to join MDI’s Advocacy Committee. If you're keen to help drive positive change, please email learninganddevelopment@mdi.ie to express your interest and find out more. We look forward to hearing from you! MDI’s Advocacy Committee brings together people with lived experience of muscular dystrophy and related neuromuscular conditions – people living with the conditions and family members – to advocate for positive change in society on areas that affect the lives of people living with neuromuscular conditions and to inform the development of MDI’s services. With support from the MDI team, the committee meets four times a year, with no meetings in July and August. Our current areas of focus are: Progress the review of the Disabled Drivers Scheme; Address the significantly under resourced adult neuromuscular service; Campaign for equal access to treatment for SMA adults.