New Equipment Alert: OMBRELO™ Special-Needs Stroller Now Available on MDI Transport (Size 3)
Muscular Dystrophy Ireland (MDI) is pleased to announce that a Size 3 OMBRELO™ special-needs stroller is now available for use through the MDI Transport Service. This equipment will be used exclusively in MDI vehicles, providing enhanced comfort, postural support, and safe, reliable travel for service users who require additional assistance during journeys.
Celebrating a Game-Changing Boost for Powerchair Football in Ireland
The launch at the National Sports Campus was attended by Minister for Sport Patrick O’Donovan and FAI CEO David Courell, underlining strong leadership support for disability inclusion in sport. Funded by the UEFA Children’s Foundation and Lord’s Taverners Ireland / RevUp, in partnership with the FAI
Save the Date – Barretstown Family Camp 2026!
This very special weekend offers families living with neuromuscular conditions the opportunity to come together in a safe, inclusive and supportive environment, with a programme of fun activities, shared experiences and much-needed time to connect.
A Day of Connection: Thank You for Making Our 2025 National Conference So Special
Thank you so much to all who attended the 2025 National Connection Conference this year. We are so grateful we got to meet so many members, experts and supporters on the day. We are incredibly grateful to our sponsors, who make days like these possible: Biogen Roche Novartis
Proposed Cost Of Disability Payment: Everything you need to know
Proposed Cost Of Disability Payment: Everything you need to know. Over the last few weeks, there has been a lot of talk about a proposed cost of disability payment, so let's break down all the details we know so far.
It is unclear what the payment will consist of, but according to an Indecon report in 2021, additional Costs of Disability averaged between €9,482 - 11,734 per year.
Happy Christmas from Muscular Dystrophy Ireland: A Message of Reflection, Gratitude, and Hope This Christmas
As we approach the Christmas season, we are mindful of those in our community who are remembering loved ones who have passed and for whom this time of year can bring many mixed emotions. We extend our sympathy and hope the season goes gently for you. Please remember that Muscular Dystrophy Ireland (MDI) is here for you should you wish to avail of support.
Duchenne Muscular Dystrophy (DMD) Paediatric and Adult Care Pathway Published
The pathway outlines recommendations for the key specialists and services involved in DMD care, supporting coordinated and consistent care for children, young people and adults living with DMD.
![[Press Release] Minister for Health Speaks at Muscular Dystrophy Ireland National Conference at Croke Park](https://images.squarespace-cdn.com/content/v1/63c138561d3afd3c27c17d5d/1765192073374-U4GX2LSPQBEB2ZEA0ULE/597316996_1261629139327537_165336742422679001_n.jpg)
[Press Release] Minister for Health Speaks at Muscular Dystrophy Ireland National Conference at Croke Park
Muscular Dystrophy Ireland (MDI) held its national conference today at Croke Park, with Minister for Health Jennifer MacNeill officially speaking at the event. The conference brought together people living with muscular dystrophy and related neuromuscular conditions, along with their families, clinicians, researchers, and disability advocates from across the country.
Check out this helpful video on how to access the CHANGING PLACES TOILET at the Cusack Suite, Croke Park for our conference on 7 December 2025.
Planning to join us at our conference on 7 December? We want to ensure all our attendees have a smooth and accessible experience! Check out this helpful video on how to access the CHANGING PLACES TOILET at the Cusack Suite, Croke Park
Check out this helpful video on how to access the car park and Cusack Suite, Croke Park for our conference on 7 December 2025.
Planning to join us at our conference on 7 December? We want to ensure all our attendees have a smooth and accessible experience! Check out this helpful video on how to access the car park and Cusack Suite, Croke Park:
🎄 Spread Some Festive Cheer with MDI Christmas Cards!
Buying MDI Christmas cards directly supports Muscular Dystrophy Ireland and helps to fund our support services for people with neuromuscular conditions across Ireland and their families..
🚨 Final call! The last day to book your child’s place at Muscular Dystrophy Ireland’s Conference is Friday, 14 November!
Join us at Croke Park on Saturday, 7 December, for a fantastic day filled with connection, fun, and learning. Don’t miss this amazing opportunity for: Youth Programme – ages 8–17 and Children’s Programme – ages 5–7.
Share Your Experience: Help Inform Access to Givinostat for Duchenne Muscular Dystrophy in Ireland
A review is under way to decide if Givinostat for Duchenne muscular dystrophy will be reimbursed in Ireland. Your experience of living with Duchenne can help inform this decision - share your story in the survey link.
Join us at Muscular Dystrophy Ireland's National Conference on 7 December at Croke Park!
Secure your spot now and be part of a powerful day of coming together as a community to share and learn together. Find out more about our exciting programmes and book your place
Be one of the first 15 households to book your spot at MDI’s Conference and receive a FREE Amazon Echo Show smart display with Alexa for attending!
Be part an unforgettable experience as we come together as a community, fostering meaningful connections, sharing knowledge, and supporting one another. Our conference is a warm and inclusive space for adults and young people living with muscular dystrophy and related neuromuscular conditions, as well as their families, healthcare professionals, and other stakeholders. We look forward to warmly welcoming you and sharing an enriching experience together.
Budget a setback for disabled people, says Federation
The Disability Federation of Ireland has said that while it welcomes the €619m increase in funding for disability services, the Budget overall represents a devastating setback for disabled people unable to work.
Book Now: MDI FSHD Community Gathering – Online | Saturday 11 October
We are delighted to invite you to our FSHD community gathering on Saturday 11 October. Please note this event will now take place online only. It will be opportunity for people living with FSHD and their families to connect as a community and learn together. We have lined up an exciting programme of speakers and topics that we hope you will find informative and empowering.
Take part in Make Way Day on Friday 26 September. The revolution starts with you!
Take part in Make Way Day on Friday 26 September. The revolution starts with you!
OPMD Awareness Day Webinar, 23 September at 5pm – Register Now!
As part of Muscular Dystrophy Awareness month, we wish to let you know that 23 September is OPMD Awareness Day, when the OPMD Community comes together to raise awareness of Oculopharyngeal Muscular Dystrophy and to celebrate all members of the OPMD community.
World Myositis Day takes place on 21 September
Myositis is an inflammatory autoimmune condition that can cause muscles to become weak and painful. Idiopathic inflammatory myopathies are an umbrella term for the different types of myositis. These autoimmune conditions mean the body attacks its own muscles, connective tissue, blood vessels, skin, lungs, and other organs. This often occurs together with other symptoms, such as muscle swelling, pain, fatigue, difficulty moving limbs or lifting arms, increased falls, trouble swallowing, and others.