[RTÉ News] Father of rare disease patient fears losing second son
Craig Coady was speaking at a protest calling for action on access to new medicines
Recent media coverage has highlighted growing calls for timely access to treatments for Duchenne muscular dystrophy and Friedreich’s Ataxia. MDI is supporting advocacy efforts for access to treatments for these conditions, as well as for adults living with spinal muscular atrophy (SMA). Here are some of the latest stories and updates.