[RTÉ News] 'Time is muscle' - decision urged on rare disease medicine

Nine-year-old Aaron Langan has Duchenne Muscular Dystrophy

Recent media coverage has highlighted growing calls for timely access to treatments for Duchenne muscular dystrophy and Friedreich’s Ataxia. MDI is supporting advocacy efforts for access to treatments for these conditions, as well as for adults living with spinal muscular atrophy (SMA). Here are some of the latest stories and updates.  

Read in full → https://www.rte.ie/news/ulster/2026/0524/1574973-dmd-campaign-health/