Limb Girdle Muscular Dystrophy (Lgmd) Community Gathering

Muscular Dystrophy Ireland (MDI) is pleased to invite you to our LIMB GIRDLE MUSCULAR DYSTROPHY (LGMD) COMMUNITY GATHERING.

📆: Wed, 4 October 2023

⏱️: 11:30 – 15:00

🔗: https://LGMD_community_gathering_MDI.eventbrite.ie

↘️Opportunity for people living with LGMD and their families to get together as a community and learn together.

↘️Hybrid event – you can attend online or in person at Muscular Dystrophy Ireland, 75 Lucan Road, Chapelizod, D20 DR77

↘️3 guest speakers: Marianne Dwyer will speak about ‘The importance of having a voice and feeling listened to; MDI member, Nicola Whelan, will speak about ‘living with LGMD’; and Pat Moeschen (USA) will speak about ‘Not living to wait, and not waiting to live, my journey with muscular dystrophy’.

↘️Time for questions and discussion.

↘️This event is free.

↘️ Lunch provided

↘️Find out more and register for the event here https://LGMD_community_gathering_MDI.eventbrite.ie

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Reimbursement Approval of Evrysdi® for the Treatment of Spinal Muscular Atrophy