Spotlight on members of our community living with neuromuscular conditions: Oisín Quinn

Spotlight On Members Of Our Community
Written By Tania Quill

As part of our members’ stories series, 13-year-old Oisín Quinn is delighted to share his story about his interest in music. Oisín lives with the neuromuscular condition, Charcot Marie Tooth type 1X (CMT1X).

Rose Maloney Quinn

I sing. It makes me happy and it’s fun. It gives me a sense of freedom and happy feelings. It takes my mind off everything, even pain. I’ve always loved dancing and singing. It just came naturally to me. I am a better singer than a dancer. I have started to write songs and I am currently recording a song I wrote. The song relates to my journey with CMT.

If you’d like to share your story, please contact us here.

Tania Quill
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Advocating for people living with neuromuscular conditions and their families:MDI and our umbrella organisations – Budget 2025 asks and general election manifestos.