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Update from the Neurology Clinical Programme: Access to Neurology Services and Covid19

March 20th, 2020

We wish to share with you Guidance issued today from the Neurology Clinical Programme: Access to Neurology Services and Covid19

Neurology services will continue to operate with some changes. Patient safety is being prioritised to limit the risk of COVID infections. For this reason, most  face to face out patient clinics have been cancelled. However, phone consultations are being provided by the Neurology teams and if clinically necessary, a face to face appointment can be scheduled in a non-COVID area if your consultant deems this to be necessary. Please note that this may be different from the normal out patient setting.

If you have any concerns about your condition, you should contact the neurology service or specialist nurse helpline that is providing your care. Please bear in mind that phone lines and neurology services will be extremely busy at this time, and that it make take some time to get through.

If you think you might have contracted COVID19, please follow the HSE Guidelines. This means that you should self-isolate and telephone your GP to arrange a test at one of the testing centres. Do not go to A&E without discussing with this with your GP or Neurology team beforehand.

If you are on treatment for a neurological condition and you are worried about your risks of developing COVID, you should follow the HSE guidelines of self-isolation, avoid physical  contact with others, wash your hands regularly with soap, and do not touch your eyes, nose or mouth. If you have any specific concerns, you should contact  your GP or your neurology team.

For specific guidance relating to MS, Parkinsons Disease, Motor Neurone Disease or Epilepsy you can contact your specialist nurse. Many individual voluntary organisations also have very helpful information on their websites.

 

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Categories: Uncategorized

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy - General
  • • MDC1A (merosin-deficient congenital muscular dystrophy)
  • • Rigid spine syndrome (RSS)
  • • Ullrich congenital muscular dystrophies
  • • Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositides

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD) - General
  • • LGMD 1B (also known as Laminopathy)
  • • LGMD 1C (also known as Caveolinopathy)
  • • LGMD 2A (also known as Calpainopathy)
  • • LGMD 2B (also known as Dysferlinopathy)
  • • LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

12. Other (Please Specify)

13. Unspecified