Welcome to the MDI website. Content and updating of information is ongoing on our website, therefore if you cannot find what you are looking for please contact us.
December 20th, 2021
UN General Assembly formally adopts resolution recognising the over 300 million Persons Living with a Rare Disease worldwide and their families
On 16 December 2021, the UN adopted the first-ever UN Resolution on ‘Addressing the Challenges of Persons Living with a Rare Disease and their Families.’ The Resolution focuses on the importance of non-discrimination and advances key pillars of the UN Sustainable Development Goals (SDGs), including access to education and decent work, reducing poverty, tackling gender inequality, and supporting participation in society. Proposed by Spain, Brazil, and Qatar, the text was co-sponsored by 54 countries including Ireland. Find out more here https://www.rarediseasesinternational.org/un-resolution/.