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MDI Members Upcoming Events

January 21st, 2021

MDI are pleased to announce a number of upcoming events that maybe of interest to our members and their families over the next few weeks:
MDI Adult Members Events:
Murder Mystery
Tuesday 2nd of February at 6:30pm via zoom hosted by our Youth Work Team and Celebs-Entertainment. To RSVP contact Sinead on 0863899285 or your local support worker. For more information see flyer below.

 

Introduction to Self-Care and Self Compassion 8-Week Course for Carers

This course has been aimed and tailored to meet the needs of parents, guardians or carers of people with Muscular Dystrophy. It begins on Tuesday the 9th of February at 6pm-7:30pm and will run for 8 weeks. To RSVP please contact Ewa at respite@mdi.ie/0866066103 or your local support worker by Friday the 29th of January. For more information see flyer below.

 

 

Introduction to Self-Care and Self Compassion 8-Week Course for members who have Muscular Dystrophy

This course has been tailored to meet the needs of MDI Members who have Muscular Dystrophy. It begins on Wednesday the 10th of February at 11:00am-12:30pm and will run for 8 weeks. To RSVP please contact Ewa at respite@mdi.ie/0866066103 or your local support worker by Friday the 29th of January. For more information see flyer below.

MDI U18 Members Events:

U18’s Spy Academy Event
Friday 29th of January at 6:30pm via zoom hosted by our Youth Work Team and Celebs-Entertainment. To RSVP contact Mary Rose on 0866066104 or your local support worker. For more information see flyer below.

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Categories: Uncategorized

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy - General
  • • MDC1A (merosin-deficient congenital muscular dystrophy)
  • • Rigid spine syndrome (RSS)
  • • Ullrich congenital muscular dystrophies
  • • Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositides

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD) - General
  • • LGMD 1B (also known as Laminopathy)
  • • LGMD 1C (also known as Caveolinopathy)
  • • LGMD 2A (also known as Calpainopathy)
  • • LGMD 2B (also known as Dysferlinopathy)
  • • LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

12. Other (Please Specify)

13. Unspecified