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LAST CHANCE: What’s your Rare Reality – Survey closing Nov 1
October 29th, 2021
Rare Diseases Ireland are asking you to tell them your experience of healthcare while living with a rare condition in Ireland. They want to understand the challenges people living with rare conditions face accessing diagnosis, treatment and care. With your help they can advocate for improved health services for everyone living with rare conditions in Ireland. Muscular Dystrophy Ireland is a member of Rare Diseases Ireland. Here is the link to the survey.
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