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Inviting members’ views on Draft State Report on the UN Convention on the Rights of Persons with Disabilities

March 19th, 2021

We are inviting MDI members to let us know what you think of the Draft Initial State Report on the Convention on the Rights of Persons with Disabilities. As a member organisation, MDI will feed into Disability Federation of Ireland’s (DFI) submission on the Draft Report. We want to include your views and experiences. In particular, we are asking you to consider:

  • Do you agree with the content of the Draft Report?
  • Are there particular Articles that you feel need greater focus?
  • Are there clarifications, inequities or omissions that you want to highlight through DFI’s submission?

You can read the Draft Report here.

We kindly as that you email mdiinfo@mdi.ie with your comments by Wednesday 24 March. They can be as short or long as you wish. You can view information about the actual Convention on the Rights of People with Disabilities here. This includes a short video.

 

Background

By ratifying the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD) in the Spring of 2018, Ireland committed to take part in the reporting process.

The first step is for a state to submit their first report, two years after ratification (April 2020).

This report is written by the state but must have input from civil society.

Currently the state has drafted a report and is asking for input from civil society.

They will then redraft the report and send it to the UN Committee on the Rights of Persons with Disabilities.

 

Why is this process important?

Civil society inputting into the state report serves a number of important functions:

  • It helps to hold the state accountable for what it says in the state report, and ensures that the views of civil society have some place in the report
  • It is a chance to let the state know how civil society feels about the implementation process
  • It is a first chance to get the views of civil society before the committee.

If you have any questions, you can contact Maeve Healy, Information Officer, on mdiinfo@mdi.ie or 0860293789.

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Categories: InformationUncategorized

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy - General
  • • MDC1A (merosin-deficient congenital muscular dystrophy)
  • • Rigid spine syndrome (RSS)
  • • Ullrich congenital muscular dystrophies
  • • Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositides

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD) - General
  • • LGMD 1B (also known as Laminopathy)
  • • LGMD 1C (also known as Caveolinopathy)
  • • LGMD 2A (also known as Calpainopathy)
  • • LGMD 2B (also known as Dysferlinopathy)
  • • LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

12. Other (Please Specify)

13. Unspecified