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ILMI online memorial to James Brosnan, Dr. John Roche and Hubert McCormack

April 5th, 2022

We wish to share an invitation from Independent Living Movement Ireland to disabled people.

As Long As We Remember, They Live With Us: Wednesday 6th April 7:30pm
A Memorial to James Brosnan, Dr. John Roche and Hubert McCormack

In a relatively short space of time, the Independent Living Movement has lost three members, mentors, comrades, and friends. Many of us have not had a chance to connect with each other to share out stories of them, to remember them and to collectively ensure that we keep their memories alight as part of the Movement.

Remembering the words of our friend the late Hubert McCormack “We must never forget the battles they fought; we must always ensure that what they fought for will remain intact and progress; We must never forget the sacrifices they made; We must never take for granted the services that we enjoy today; We must keep our fallen friends’ dreams and aspirations for the future alive and we must continue in their footsteps and remain focused to ensure that disabled people with in this country and elsewhere, can live a life equal to that of our non-disabled counterparts”.

On the evening of April 6th, we invite disabled people to an online gathering as we remember those we worked alongside, planned and campaigned with, laughed with, sang and socialised with over the decades. It will be a chance to remember them for those who knew them well and a time to learn about their lives for those who didn’t but want to connect to the history of the Irish Independent Living Movement.

This is a zoom event and registration is essential. To register, please email info@ilmi.ie.

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Categories: Uncategorized

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy
  •     •  General
  •     •  MDC1A (merosin-deficient congenital muscular dystrophy)
  •     •  Rigid spine syndrome (RSS)
  •     •  Ullrich congenital muscular dystrophies
  •     •  Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy
  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD)
  •     •  General
  •     •  LGMD 1B (also known as Laminopathy)
  •     •  LGMD 1C (also known as Caveolinopathy)
  •     •  LGMD 2A (also known as Calpainopathy)
  •     •  LGMD 2B (also known as Dysferlinopathy)
  •     •  LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Congenital Fibre-type Disproportion Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositis

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Friedreich’s Ataxia

12. Other (Please Specify)

13. Unspecified