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Covid-19 Public Health Information & Resources

May 5th, 2020

There have been a number of updates and developements of information and resources available to the public in response to Covid-19.
Below are the most recent updates regarding Covid-19 for people with disabilities, as well as their carers, families, and organisations who support them.

 

Public Health Information:

For the most up to date information and advice on Coronavirus, please go tothe following links:
Links:   https://www2.hse.ie/coronavirus/
https://www.hpsc.ie/a-z/respiratory/coronavirus/novelcoronavirus/

 

HSE COVID-19 Webpage for People with Disabilities and Their Families

A new HSE webpage specifically to provide easy access to Covid related information for people with disabilities and their families is now live.
Link:  https://www2.hse.ie/wellbeing/supporting-someone-with-special-needs-during-covid19.html

 

COVID-19 Cocooning Public Health Advice Easy Read

An easy read version of the Cocooning public health advice can be found via the link.
Link:  Coronavirus COVID-19 Cocooning Public Health Advice

 

Mental Wellbeing Campaign

The #inthistogether Mental Wellbeing campaign offers support and resources for people to help deal with stress and isolation, and also helps people maintain wellbeing and cope at home during this time.
Link:  www.gov.ie/together

The campaign now incorporates two new areas:
1. Additional resources for parents together with play advice and ideas – Let’s play Ireland, from the Department of Children and Youth Affairs
2. Local Authorities across the country are linking out to local initiatives supporting wellbeing at this time

 

Irish Sign Language (ISL) Videos 

There are Irish Sign Language videos available from the HSE website which explains Covid-19 and Testing Procedures.
Link:   ISL Covid-19 Resources

 

HSE Approved Guidance for Disability Services

There are new COVID-19 Guidance resources now available for staff and carers who provide care to people with disabilities. This guidance will help ensure that staff and carers are fully aware of the steps they need to take during the outbreak.
Link:  Coronavirus (COVID-19) Posters and Resources

 

Guidance Documents developed by HSE Disability Services
Link:  
Guidance Documents developed by HSE Disability Services

  

 

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Categories: Uncategorized

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy - General
  • • MDC1A (merosin-deficient congenital muscular dystrophy)
  • • Rigid spine syndrome (RSS)
  • • Ullrich congenital muscular dystrophies
  • • Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositides

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD) - General
  • • LGMD 1B (also known as Laminopathy)
  • • LGMD 1C (also known as Caveolinopathy)
  • • LGMD 2A (also known as Calpainopathy)
  • • LGMD 2B (also known as Dysferlinopathy)
  • • LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

12. Other (Please Specify)

13. Unspecified