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Celebrating leadership and participation of people with disabilities – UN International Day of Persons with Disabilities

December 3rd, 2021

Today is United Nations’ International Day of Persons with Disabilities. This year’s theme – Leadership and participation of persons with disabilities toward an inclusive, accessible and sustainable post-COVID-19 world – calls to mind many MDI members. Today, we are putting a spotlight on Diana O’Donohue who is actively involved with the local community through her committee membership for Rush Tidy Towns. Recently, Diana managed a fantastic project to paint 18 murals depicting life in Rush. This involved rallying over 29 community groups, 31 artists and 25 scout members to help. She worked closely with each group, designing ideas and working out plans for preparing the walls so artists could paint their mural, and mentoring as many of the volunteers.

Diana comments: “It was rewarding to see the smiles that the murals put on everyone’s faces. Many people made going by the murals a new part of their routine walk and said that it was great for their mental health. It gives me great pride to know that, despite my muscular dystrophy and from my wheelchair, I could execute such a project. I am delighted that this project has such a positive impact on my community, especially during these unprecedented times in everyone’s lives, and that I was part of it”.

Diana has also organised a calendar to fundraise for the Tidy Towns and helped organise a ‘seed share’ day as part of the Rush sustainability initiative. She is currently project-managing another mural project for the local harbour toilets unit. She says the Tidy Towns have made her feel very welcomed and accommodated her in every way possible. Diana lives with limb girdle muscular dystrophy (LGMD).

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Categories: Uncategorized

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy
  •     •  General
  •     •  MDC1A (merosin-deficient congenital muscular dystrophy)
  •     •  Rigid spine syndrome (RSS)
  •     •  Ullrich congenital muscular dystrophies
  •     •  Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy
  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD)
  •     •  General
  •     •  LGMD 1B (also known as Laminopathy)
  •     •  LGMD 1C (also known as Caveolinopathy)
  •     •  LGMD 2A (also known as Calpainopathy)
  •     •  LGMD 2B (also known as Dysferlinopathy)
  •     •  LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Congenital Fibre-type Disproportion Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositis

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Friedreich’s Ataxia

12. Other (Please Specify)

13. Unspecified