Annual General Meeting 2023

May 5th, 2023

Dear Member,

I am writing to inform you that Muscular Dystrophy of Ireland Company Limited by Guarantee (MDI) will hold its 2023 Annual General Meeting (“AGM”) on Saturday, 27th May 2023 at 12.30 pm at the registered office of the Company at 75 Lucan Road, Chapelizod, Dublin 20, D20 DR77 and, for members using Zoom facility, at the member’s home address as recorded in the register of members of the Company.

This year, The Board have made the decision that the AGM process will be carried out in a hybrid manner, electronically by Zoom facility and in person at MDI Office at 75 Lucan Road, Chapelizod, Dublin D20 DR77.

The links below will enable you to download all the relevant materials that you will need for the AGM:

⦁ The AGM notice for 27th May 2023
The Minutes of last year’s AGM held on 24th September 2022
Audited Financial Statements for the year ended 31st December 2022, as approved by the Board of MDI
⦁ The Proxy Form 2023
 as PDF or Word Document which we ask you to complete and return by 5pm on Friday 19th May 2023 to Company Secretary, Ms. Una McCourt at .If you are unable to attend the AGM in person at MDI Office or electronically by Zoom facility, you can complete Proxy Form 2023 which will give the named person authority to vote on your behalf at the AGM. Please note only paid-up members who have paid their annual subscription on or by 31st March 2023 can vote at the AGM on any resolutions.

Please note that there are twelve vacancies on the Board of Directors this year, as notified by email on 17th April 2023. We received eleven valid nominations by close of the nomination deadline on the 21st April 2023. These nominations are in accordance with our nomination procedure as stated in our letter of 17th April 2023. Therefore, there will not be an election at the AGM on 27th May 2023.

Please see biographies of proposed directors here

Please submit any queries or issues in accessing the various links to Ms. Una McCourt, Company Secretary at

Members should register attendance by 5pm on Friday the 19th May 2023 by emailing Company Secretary, Ms. Una McCourt at and noting if attending in person at MDI Office or electronically by Zoom facility. If attending by Zoom facility, details will be forwarded to those who register their attendance.

Yours sincerely,

Una McCourt
Una McCourt
Company Secretary
Muscular Dystrophy Ireland Company Limited by Guarantee

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Categories: Uncategorized

1. Muscular Dystrophies

  • Becker muscular dystrophy
  • Duchenne muscular dystrophy
  • Manifesting carrier of Duchenne
  • Congenital muscular dystrophy
  •     •  General
  •     •  MDC1A (merosin-deficient congenital muscular dystrophy)
  •     •  Rigid spine syndrome (RSS)
  •     •  Ullrich congenital muscular dystrophies
  •     •  Bethlem myopathy
  • Emery-Dreifuss muscular dystrophy
  • Facioscapulohumeral muscular dystrophy
  • Limb-girdle types of muscular dystrophy (LGMD)
  •     •  General
  •     •  LGMD 1B (also known as Laminopathy)
  •     •  LGMD 1C (also known as Caveolinopathy)
  •     •  LGMD 2A (also known as Calpainopathy)
  •     •  LGMD 2B (also known as Dysferlinopathy)
  •     •  LGMD 2I
  • Ocular myopathies including ocularopharangeal muscular dystrophy

2. Myotonic Disorders

  • Congenital Myotonic Dystrophy
  • Myotonia
  • Myotonic Dystrophy

3. Congenital Myopathies

  • Central Core Myopathy
  • Congenital Fibre-type Disproportion Myopathy
  • Minicore (Multicore) myopathy
  • Myotubular or Centronuclear myopathy
  • Nemaline myopathy

4. Mitochondrial Myopathies

  • Mitochondrial Myopathies

5. Metabolic Disorders

  • Metabolic disorders (general)
  • McArdle’s Disease
  • Pompe’s Disease

6. Periodic Paralyses

  • Periodic Paralyses

7. Autoimmune Myositis

  • Polymyositis, Dermatomyositis and Sarcoid myopathy
  • Juvenile dermatomyositis
  • Inclusion body myositis

8. Spinal Muscular Atrophies

  • Severe (Type I)
  • Intermediate (Type II)
  • Mild (Type III)
  • Adult spinal muscular atrophy

9. Hereditary Motor and Sensory Neuropathies

  • (Also known as Charcot-Marie-Tooth or Peroneal muscular atrophy)

10. Disorders of the Neuromuscular Junction

  • Congenital myasthenic syndromes
  • Myasthenia Gravis

11. Friedreich’s Ataxia

  • Friedreich’s Ataxia

12. Other (Please Specify)

13. Unspecified